It takes a week to recover from the PEG surgery. Yes the first few days are the worst with daily improvements from day 3 to day 7. This again is where hydration and food are very important. I did not feel like eating the week of recovery and lost 8 pounds. Keep that in mind. Also time is needed to get used to carrying the tube around. My wife and I without knowing better taped the tube to my stomach to keep it stable. A week later a nurse gave me a stick on catheterization stabilizer to hold it in place which was great. Make sure to ask for some. You need to change out once a week and change placement to protect the skin underneath. Also tracheotomy drainage gauze helps to protect the area around the tube until seepage stops.


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.