I said a major CCC can be too agressive, not over treat the patient, which may be inferred the same. My opinion from personal experience, one which turned out not that well, and another worked out better at two different CCC. If my initial treatment worked out, I would say the opposite, but I can't, and as a result of my mishap, I have been fighting this same disease continiously for 3.8 years with 5 recurences, and the side efeects, including severe anemia, and stage 4 chronic kidney disease, and lost count of all the doctor vists, tests and scans, why, because I went with an aggressive treatment, and could not do any further treatments for 1.3 years due to nearly dying. I should have heeded warning when the ENT, RO, and intern there said I may not get chemo, and would leave it up to the MO, who said I was fine, and not only did I get chemo, I recieved more than most get in 7 weeks in 5 days, called TPF Induction Chemo, even that looked higher then what was the protocol, but chemo is based on weight too. Maybe it did save my life? I don't know, but it almost killed me too. My current CCC MO said in all his years in practice, i think 25, he never seen anyone respond to IC the way I did, so that is my short story.

It makes sense anyway a CCC can be more aggresseive, they have more expeirence in more advanced treatments available, training, etc. A community hospital is more conservative, I believe. All have postive and negative aspects. I just would never assume again that a CCC is always best for my situation haveving goitten burned once, literally. I still go to a CCC, and have my 12th PET/CT scan next month, and all my follow-up visits with the MO, RO, and ENT there.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs