Hi David,

Thanks for the feedback. At the moment I've got a little different focus than you had, perhaps because my cancer was just stage I, and there was no cancer in what they thought was my tumor - it was just inflamed tissue, possibly from years of chronic irritation. My detectable cancer was limited to the biopsy, and my focus right now is on:

How do I find a medical professional familiar with addressing involuntary tongue movements?

It seems cancer specialists really don't know/care about involuntary tongue movements. I'm concerned that if I don't find someone to help interrupt the tongue movement, then my healing process is at risk at the incision site, and cancer recurrence is a greater possibility. Plus the tongue movement leads to constant pain.

Rahel


Leukoplakia 3/07, 34y.o. non-smoker/drinker
Biopsy 3/08: clear (no monitoring suggested - grr)
Biopsy 10/18/10: SCC, Stage 2 1.
Surgery 11/15/10: glossectomy R side oral tongue & partial neck dissection. Margins, nodes & salivary gland clear!
Subsequent MRIs/CTs/PETs: All clear!