Laurie,
So sorry to hear Roy is having difficulty eating. My hubby finished treatment right about the same time as yours, and has had a swallow test. I would highly recommend this. They video x-rayed him swallowing different foods and see exactly where the "hang up" is. We are waiting to get some targeted therapy for this.
He looks forward to being able to eat solids without washing down each bite with gulps of water -- someday hopefully. Anyway, I guess all I can say is this is a SLOW process, that taxes all our patience! Hang in there. We CG's have a tough job, but do it through our love.