#91708 03-13-2009 06:13 AM | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Jan 2009 Posts: 216 | Mike finished his IMRT and Erbutix treatments and as of last night we are home!!! (We were stuck in a hotel for 12 days while the 2 treatments per day were taking place). Doc says he can no longer see the tumor on Mike's tongue but speculates he will need neck dissection on at least one side as the lymph node went down some but not enough. So we wait...appt with surgeon in 3/30. Peg tube is doing well. So far weight loss was at 20# and has gained 1.5 of that back. Fatigue is bad, neck is bad...all to be expected. Grandkids are hanging in there....only minor setbacks with the youngest one as to his PTSD but manageable. We're going thru this one day at a time and I truly don't know how we would have managed if not for this forum. Thanks to everyone not only for answers to my questions but for all the posts. I have learned much just by reading the stories of others as well as the educational pages and the draft copy...absolutely invaluable.
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | So you probably already know that he may have a few more weeks of feeling bad so just be prepared for the worse. I hope in the next couple of weeks that node resolves itself.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jan 2009 Posts: 216 | Yep, I've read enough on here to know the next couple of weeks won't be pretty. However, just being at home instead of in a hospital or hotel will be an improvement, at least mentally, for both of us 
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Cheryl
Ive been wondering what happened to you. I know your hands are very full right now. Thank you for posting an update. Almost finished with the bad stuff. Very soon your husband will feel better. Hang in there!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jan 2009 Posts: 216 | We are doing much better than I expected. And how are you doing with all your extractions? Better by now, I hope.
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Glad to be home I bet cheryl, I remember staying in those blasted Motels. It did beat driving over 100 miles and being in the Columbus traffic daily. Good luck with these 2 weeks, but then again, It didn't bother me much.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
