Mike finished his IMRT and Erbutix treatments and as of last night we are home!!! (We were stuck in a hotel for 12 days while the 2 treatments per day were taking place). Doc says he can no longer see the tumor on Mike's tongue but speculates he will need neck dissection on at least one side as the lymph node went down some but not enough. So we wait...appt with surgeon in 3/30. Peg tube is doing well. So far weight loss was at 20# and has gained 1.5 of that back. Fatigue is bad, neck is bad...all to be expected. Grandkids are hanging in there....only minor setbacks with the youngest one as to his PTSD but manageable. We're going thru this one day at a time and I truly don't know how we would have managed if not for this forum. Thanks to everyone not only for answers to my questions but for all the posts. I have learned much just by reading the stories of others as well as the educational pages and the draft copy...absolutely invaluable.

So you probably already know that he may have a few more weeks of feeling bad so just be prepared for the worse. I hope in the next couple of weeks that node resolves itself.

Yep, I've read enough on here to know the next couple of weeks won't be pretty. However, just being at home instead of in a hospital or hotel will be an improvement, at least mentally, for both of us

Cheryl
Ive been wondering what happened to you. I know your hands are very full right now. Thank you for posting an update. Almost finished with the bad stuff. Very soon your husband will feel better. Hang in there!!!

We are doing much better than I expected. And how are you doing with all your extractions? Better by now, I hope.

Glad to be home I bet cheryl, I remember staying in those blasted Motels. It did beat driving over 100 miles and being in the Columbus traffic daily. Good luck with these 2 weeks, but then again, It didn't bother me much.