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#105305 10-18-2009 08:52 PM
Joined: Sep 2009
Posts: 96
BrandyK Offline OP
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Dealing with things day by day but also frustrated with just how slow my body seems to be healing. So slow that my RO is also frustrated. I am 6 months out from treatment and I am where most people are after 6 weeks. For some reason my bosy did NOT like radiation. Seems to have worked on the cancer which is good but frustrated with the mouth sores that come and go. I want to try some food but hard to do only 3 teeth on top, a hole that goes to my left nose and all the mouth sores. I can't wait till my body decides to start healing a little faster. I am glad that it is improving but gets frustrating.

Not only have I been dealing with that I went to get a colonoscopy and they found two rather large polyps in my colon. Something they were NOT expecting to find on a 34 year old. One was 8 inches long and the other was a little over 7 1/2 inches. Luckily they were not cancerous but they are the type that turns cancerous. On July 3rd I was hospitalized with very high blood sugar and was diagnosed with diabetes. I mean how much more can you throw at me. I am praying that when I can start to eat and get the tummy tube out that it will go away. I am REALLY praying that that happens as I have enough to deal with alrady. Fun, fun fun... Praying that after they do surgery on the polyps nothing else will pop up and my body can get back to healing.

Last edited by BrandyK; 10-18-2009 10:06 PM.

31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #105321 10-19-2009 05:30 AM
Joined: Sep 2006
Posts: 8,311
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Hang in there. Our recovery can take every bit of 2 years so don't let this process get to you.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #105325 10-19-2009 06:28 AM
Joined: Jul 2007
Posts: 939
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Brandy,

Diabetes may be a major player in why you are not healing as fast as most. I would think that if you get this under control that you might see much improvement.

Best of luck to you...I know it must be terribly frustrating but this diabetes diagnosis may be the best thing that has happened lately as it could be the clue you needed to get better.

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
debandbill #105430 10-20-2009 06:43 PM
Joined: Sep 2009
Posts: 96
BrandyK Offline OP
Supporting Member (50+ posts)
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Joined: Sep 2009
Posts: 96
I am trying to be patient. I am going back to the accupuncturist as well to help as well. Since I was dignosed with the diabetes it has been under control since mid July.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #105595 10-22-2009 04:27 PM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Just give this your best shot and you are going to win you war, It all takes time and willingness to fight. None of the I feel sorry for myself because that leads to self pity which none of us need. You seem to understand your problem, so come out swinging.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #105609 10-22-2009 09:26 PM
Joined: May 2009
Posts: 35
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Joined: May 2009
Posts: 35
Brandy,

Two things I'd like to share with you based on your original post Oct 18th. From "The Ten Commandments for Cancer Survival":

#4. Thou shalt regard thy ailment as a temporary detour in life and shalt plan thy future as though this detour had not occurred. Thou shalt never, at no time, no how, regard thy temporary ailment as permanent. Thou shalt set long-term goals for thyself. For thou will verily recover and your believing so will contribute mightily to thy recovery.

#10. Thou shalt have enduring and unassailable faith, whether thy faith be in a Supreme Being, in Medical Science, in Thy Future, in Thyself, or in Whatever. Steadfastly sustain thy faith for it shall sustain thee.

Hang in there, and you will eventually see these through.

Jojo


Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09

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