#99355 07-13-2009 11:54 AM | Joined: Apr 2009 Posts: 75 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2009 Posts: 75 | Hi All!
My dad is done with his treatment and I have my fingers crossed. He asked me yesterday to "ask those people on your computer", what foods he should try. I know nothing tastes good at the begining. But, he has had applesauce and pudding. What kind of real food is usually well tolerated? Also, keep Tym's father in your thoughts and prayers. He is having surgery today.
Thanks so much, Boston
Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
| | | | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2008 Posts: 251 | Boston, Look at this thread started by Christine. List of Easy Foods She has a lot of suggestions on her list and is the "Go-To" person on this topic (among others). My thoughts to you, your dad and Tym's father.
Catherine
2mm tumor excised 09/23/2008 (floor of mouth) SCC (superficially invasive, well-differentiated) Stage 1, T1N0M0 01/2009 and 01/2010 - PET/CT clear Four and 1/2 years - NED! "Detection can be easy, treatment is not!"
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Let him try anything he wants. He will make his own favorite list but do tell him to keep trying as our taste and saliva gradually improve during our long recovery so just because something doesn't make his list now, it may in a few months.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | If he can imagine it, and it can be put in a blender, go for it. No meats tho. THey just don't make it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 | I found that freshness counts as much as anything, still does a great deal for me. So the more locally grown fruits and veggies your can get your hands on the better. Citrus may be a no go for awhile but your mileage will vary.
+1 for no meat, just yet.
Kevin 18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | | | Joined: Oct 2008 Posts: 49 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2008 Posts: 49 | Hi Boston,
Try Cream of Wheat with cinnamon sprinkled in it made with lots of milk and a sugar. My hubby loved it and MO said it was great because the zinc in it helps him to heal. Also, Nissan Cup of Noodles, chopped up small. Homemade chicken soup made with acini de pepi (balls) noodles, cooked WELL. Scrambled eggs with everything you can get your hands on in it...pureed spinach and portabello mushrooms with butter and a bit of parm cheese tasted good and was easy to swallow. NO pepper...try paprika instead. Fresh fruit...keep trying all varieties staying away from citrus ones. (Nothing with seeds.) Instant mashed pots.-- try different amounts of liquid in it.
These are just a few suggestions. Good luck to you and your father.
Donna
Caregiver to Hubby,Stage IVb, SCC to left tonsil, Mets to nodes, Tonsillectomy, Cisplatin,Taxotere,5FU x 3, IMRT 33 Rads + Carbo x 6, RND 03/09--Dx NHLymphoma 04/09, CT of chest, stom, pel--all clear, 05/09 Pet--all clear, 08/09 Pet--all clear
| | | | Joined: Apr 2009 Posts: 75 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2009 Posts: 75 | Hi:
Thank you for your food suggestions and kind words. I will give them a try.
Boston
Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | There is a wide range of experiences on this matter. For me, my sweet toothe started coming back soonest so I could eat things like ice cream, Jello and fresh fruits as long as they are ripe and juicy. But for over a year just about everything else just tasted like garbage no matter what I did with it so it was Ensure Plus that kept me alive for that time. A few months ago I tried some won ton soup from the restraunt down the street and was shocked that it actually tasted pretty good so I started eating lots of Ramen and other clear soups. Now, I'm getting up to speed at last with meat and potatoes and fresh vegggies as long as I have lots of gravy as dry mouth is still an issue even as taste comes back. It gets very frustrating when something sounds really good and you taste it and it's awful and it's easy to get depressed thinking you may never be able to enjoy food again, I know that's how I've felt for these past 18 months but now food is becomeing enjoyable again. Tell him to take his time and let it come. A lot of people were able to eat a lot sooner than I was so he just needs to be patient. As I was saying when I first found I could eat ice cream "where there's ice cream, there's hope" ;-). Wow, that was kind of a rambling reply but I hope it gives you an idea of the range of possible scenarios.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Cream of wheat with a little coco wheats mixed in is tasty, add the sugar or a substitute. Life and let it soak until it is soggy and the same with cheerios, make poack=hed egss over soggy toast and lots of butter, put poached eggs over well buttered pancakes too, Mine have to be soggy because of no teeth. I been putting real ripe red raspberries over my cereal that I buy at Sam's club. THey are one thing that it seems I can taste. I would bet a slice of bacon still tatse good as well as sausage, I miss my meats big time,, but i am living on what my mij=nd say to try. If you can think of it,, try it. same with other meals LOL but i mostly ended up with the eggs , pancakes and cereals. Good milkshakes work too as do different ice creams melted with toppings then blended
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2009 Posts: 18 Member | Member Joined: Jun 2009 Posts: 18 | I'm so glad to hear all of these suggestions of foods. My sister is a little over two weeks into a six week tx plan. She has lost some taste, but some sense of taste remains at this point. I understand that all taste will vanish soon. Can someone explain more about why meat is a no go for a while after treatment? How does one get protein? We are already struggling some with making sure she gets enough protein. The nutritionist recommended 50-75 grams/day for her.
Sister, age 24, dx SCC 3/5/09, Stage IV T3N2M0, HPV-, 6x induction chemo (Cetuximab (Erbitux), Carboplastin, Taxol), 1/4 tongue removed and left modified radical neck dissection 5/14/09, started IMRT 7/7/09, 30tx, finished 8/14/09
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Courtney, remember everyone is different. I did not lose all sense of taste. Almost but not all, I could still taste the chocolate in yoo-hoo and couldnt stomach drinking the liquid formulas.
Meat isnt something that most of us were able to chew and swallow. It becomes work even trying to swallow a sip of water. Carnation very high calorie drink or ensure, boost etc will give full nutrition. If your sister has a feeding tube then she would be using prescription liquid formula for her nutrition. She should be taking in minimum 48oz water (more is even better) and 2500+ calories per day. Being young will help her recover, but she needs alot of calories to help with fighting this and to heal. I was taking in 5000+ calories daily while recovering and didnt gain an ounce.
Best of luck with your sisters treatments and progress. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I like that yahoo chocolate too, YAHOOOOOOIE
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I am sitting here eating fresh from the garden fired red tomatoes. I just gave the recipe to Davu=id in another post so I better give it here too. LOL If you have very ripe and soft red tomatoes, just dip them in pancake flower and be sure to get the flour on all of it. If they are firm, then make a kind of thick pancake batter and dip and fry them to a nice dark brown.. Delicious to eat and I have been eating them this way since I got married about !#$ years ago. I like to invent when I cook.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Great idea Jim. I havent had those for years. I think I will stop at a farmers market today and get some tomatoes and fry them up. I used to love fried tomatoes, my grandmother made them for me.
Another good one is fried zuchini. Peal it slice it thin mix 2 eggs with a cup of milk dip in the egg mixture fry them in a tiny bit of butter or oil when they start get soft or turn brown they are done add a little salt (if you can eat that) ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2009 Posts: 90 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2009 Posts: 90 | They sound good, I'll try some tonight
caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
| | | | Joined: Nov 2006 Posts: 95 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2006 Posts: 95 | I just saw your entry while looking for some information for my husband. Blueberries, my husband ate lots and lots of blueberry pancakes. Many years before the cancer an older friend of ours spontaneously came running up to him at the grocery store one day carrying some blueberries and told him � �blueberries cure cancer, you know� It stuck in my husband's head and he wanted to try them and they went down well. He also ate a lot of beans, mainly navy beans, but a fairly good variety of them. Then there was his mainstay iced cold Chocolate High Protein Boost. He also ate a few really weird things that the oncologist couldn�t believe he was getting down in the middle of his radiation � fried oysters once and fresh pecans. But blueberries, beans and Boost were his main foods for many weeks
Barbara S C/G to Michael age 64, stage 1 base of tongue SC cancer and a stage one for a couple lymph nodes, diagnosed 09/12/06, IMRT radiation 10/24/06 to 12/05/06 , last PET / CT scan 11/7/11 - still cancer free!!!
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Christine , I like the zucchini fried too, Can you believe this year noone has dropped any off and I didn't plant any. LOL Usually they take up too much room from so many donations.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Egg plant too but my seeds must have rotted from too much rain this spring.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Mar 2009 Posts: 10 Member | Member Joined: Mar 2009 Posts: 10 | I have looked all over this site for information regarding the treatment for cancer on the epiglottis. Has anyone ever gotten cancer there and if so what were the outcomes? Feb. 2008 I came up/down with an SCC stage 4 on the base of tongue. I had all the usuals, cleared several times, now with esophageal constriction, can't eat solids or liquids. Will be starting swallowing treatments/exercises next week. At last visit with Dr. he found a 'bug' on my epiglottis. Go back next week to get a Tx. Radiation is not an option. Surgery is ok with me. ? who has had this situation themselves? thanks been on a PEG ssince last Feb. Doesn't really bother me. thanks
I have found that attitude can make a world of difference.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Gnoled. your Dr can dialate your esophagus and stretch it. I get this done about every 3 months. I had surgery where 1/3 of your stomache is wrapped around your esophagus, but was left with Barretts esophagus. It isn't a bad procedure at all., Been gettin it done since 1996.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Dec 2007 Posts: 138 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Dec 2007 Posts: 138 | Pasta salad (One box of shell pasta cooked soft, 2-3 cut up green & yellow peppers, 3-4 cut up fresh tomatoes, Kraft Free Italian dressing). Keep chilled in fridge. NOTE: I like to heat mine up before I eat it because it goes down easier and is more soothing to my throat when it's warm.
Nine years out. New normal with limitations, but surviving and living life to the fullest.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | To eat this, I have to cook the pasta to overdone and doughy, the veggies the same way only I cook them in oil to make them soft enough to mash with my gums and make sure it is oily. It does vary this extra soft diet some.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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