#99355 07-13-2009 11:54 AM | Joined: Apr 2009 Posts: 75 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2009 Posts: 75 | Hi All!
My dad is done with his treatment and I have my fingers crossed. He asked me yesterday to "ask those people on your computer", what foods he should try. I know nothing tastes good at the begining. But, he has had applesauce and pudding. What kind of real food is usually well tolerated? Also, keep Tym's father in your thoughts and prayers. He is having surgery today.
Thanks so much, Boston
Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
| | | | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2008 Posts: 251 | Boston, Look at this thread started by Christine. List of Easy Foods She has a lot of suggestions on her list and is the "Go-To" person on this topic (among others). My thoughts to you, your dad and Tym's father.
Catherine
2mm tumor excised 09/23/2008 (floor of mouth) SCC (superficially invasive, well-differentiated) Stage 1, T1N0M0 01/2009 and 01/2010 - PET/CT clear Four and 1/2 years - NED! "Detection can be easy, treatment is not!"
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Let him try anything he wants. He will make his own favorite list but do tell him to keep trying as our taste and saliva gradually improve during our long recovery so just because something doesn't make his list now, it may in a few months.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | If he can imagine it, and it can be put in a blender, go for it. No meats tho. THey just don't make it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 Likes: 1 | I found that freshness counts as much as anything, still does a great deal for me. So the more locally grown fruits and veggies your can get your hands on the better. Citrus may be a no go for awhile but your mileage will vary.
+1 for no meat, just yet.
Kevin 18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | | | Joined: Oct 2008 Posts: 49 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2008 Posts: 49 | Hi Boston,
Try Cream of Wheat with cinnamon sprinkled in it made with lots of milk and a sugar. My hubby loved it and MO said it was great because the zinc in it helps him to heal. Also, Nissan Cup of Noodles, chopped up small. Homemade chicken soup made with acini de pepi (balls) noodles, cooked WELL. Scrambled eggs with everything you can get your hands on in it...pureed spinach and portabello mushrooms with butter and a bit of parm cheese tasted good and was easy to swallow. NO pepper...try paprika instead. Fresh fruit...keep trying all varieties staying away from citrus ones. (Nothing with seeds.) Instant mashed pots.-- try different amounts of liquid in it.
These are just a few suggestions. Good luck to you and your father.
Donna
Caregiver to Hubby,Stage IVb, SCC to left tonsil, Mets to nodes, Tonsillectomy, Cisplatin,Taxotere,5FU x 3, IMRT 33 Rads + Carbo x 6, RND 03/09--Dx NHLymphoma 04/09, CT of chest, stom, pel--all clear, 05/09 Pet--all clear, 08/09 Pet--all clear
| | | | Joined: Apr 2009 Posts: 75 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2009 Posts: 75 | Hi:
Thank you for your food suggestions and kind words. I will give them a try.
Boston
Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | There is a wide range of experiences on this matter. For me, my sweet toothe started coming back soonest so I could eat things like ice cream, Jello and fresh fruits as long as they are ripe and juicy. But for over a year just about everything else just tasted like garbage no matter what I did with it so it was Ensure Plus that kept me alive for that time. A few months ago I tried some won ton soup from the restraunt down the street and was shocked that it actually tasted pretty good so I started eating lots of Ramen and other clear soups. Now, I'm getting up to speed at last with meat and potatoes and fresh vegggies as long as I have lots of gravy as dry mouth is still an issue even as taste comes back. It gets very frustrating when something sounds really good and you taste it and it's awful and it's easy to get depressed thinking you may never be able to enjoy food again, I know that's how I've felt for these past 18 months but now food is becomeing enjoyable again. Tell him to take his time and let it come. A lot of people were able to eat a lot sooner than I was so he just needs to be patient. As I was saying when I first found I could eat ice cream "where there's ice cream, there's hope" ;-). Wow, that was kind of a rambling reply but I hope it gives you an idea of the range of possible scenarios.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Cream of wheat with a little coco wheats mixed in is tasty, add the sugar or a substitute. Life and let it soak until it is soggy and the same with cheerios, make poack=hed egss over soggy toast and lots of butter, put poached eggs over well buttered pancakes too, Mine have to be soggy because of no teeth. I been putting real ripe red raspberries over my cereal that I buy at Sam's club. THey are one thing that it seems I can taste. I would bet a slice of bacon still tatse good as well as sausage, I miss my meats big time,, but i am living on what my mij=nd say to try. If you can think of it,, try it. same with other meals LOL but i mostly ended up with the eggs , pancakes and cereals. Good milkshakes work too as do different ice creams melted with toppings then blended
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2009 Posts: 18 Member | Member Joined: Jun 2009 Posts: 18 | I'm so glad to hear all of these suggestions of foods. My sister is a little over two weeks into a six week tx plan. She has lost some taste, but some sense of taste remains at this point. I understand that all taste will vanish soon. Can someone explain more about why meat is a no go for a while after treatment? How does one get protein? We are already struggling some with making sure she gets enough protein. The nutritionist recommended 50-75 grams/day for her.
Sister, age 24, dx SCC 3/5/09, Stage IV T3N2M0, HPV-, 6x induction chemo (Cetuximab (Erbitux), Carboplastin, Taxol), 1/4 tongue removed and left modified radical neck dissection 5/14/09, started IMRT 7/7/09, 30tx, finished 8/14/09
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