| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Courtney, remember everyone is different. I did not lose all sense of taste. Almost but not all, I could still taste the chocolate in yoo-hoo and couldnt stomach drinking the liquid formulas.
Meat isnt something that most of us were able to chew and swallow. It becomes work even trying to swallow a sip of water. Carnation very high calorie drink or ensure, boost etc will give full nutrition. If your sister has a feeding tube then she would be using prescription liquid formula for her nutrition. She should be taking in minimum 48oz water (more is even better) and 2500+ calories per day. Being young will help her recover, but she needs alot of calories to help with fighting this and to heal. I was taking in 5000+ calories daily while recovering and didnt gain an ounce.
Best of luck with your sisters treatments and progress. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I like that yahoo chocolate too, YAHOOOOOOIE
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I am sitting here eating fresh from the garden fired red tomatoes. I just gave the recipe to Davu=id in another post so I better give it here too. LOL If you have very ripe and soft red tomatoes, just dip them in pancake flower and be sure to get the flour on all of it. If they are firm, then make a kind of thick pancake batter and dip and fry them to a nice dark brown.. Delicious to eat and I have been eating them this way since I got married about !#$ years ago. I like to invent when I cook.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Great idea Jim. I havent had those for years. I think I will stop at a farmers market today and get some tomatoes and fry them up. I used to love fried tomatoes, my grandmother made them for me.
Another good one is fried zuchini. Peal it slice it thin mix 2 eggs with a cup of milk dip in the egg mixture fry them in a tiny bit of butter or oil when they start get soft or turn brown they are done add a little salt (if you can eat that) ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2009 Posts: 90 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2009 Posts: 90 | They sound good, I'll try some tonight
caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
| | | | Joined: Nov 2006 Posts: 95 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2006 Posts: 95 | I just saw your entry while looking for some information for my husband. Blueberries, my husband ate lots and lots of blueberry pancakes. Many years before the cancer an older friend of ours spontaneously came running up to him at the grocery store one day carrying some blueberries and told him � �blueberries cure cancer, you know� It stuck in my husband's head and he wanted to try them and they went down well. He also ate a lot of beans, mainly navy beans, but a fairly good variety of them. Then there was his mainstay iced cold Chocolate High Protein Boost. He also ate a few really weird things that the oncologist couldn�t believe he was getting down in the middle of his radiation � fried oysters once and fresh pecans. But blueberries, beans and Boost were his main foods for many weeks
Barbara S C/G to Michael age 64, stage 1 base of tongue SC cancer and a stage one for a couple lymph nodes, diagnosed 09/12/06, IMRT radiation 10/24/06 to 12/05/06 , last PET / CT scan 11/7/11 - still cancer free!!!
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Christine , I like the zucchini fried too, Can you believe this year noone has dropped any off and I didn't plant any. LOL Usually they take up too much room from so many donations.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Egg plant too but my seeds must have rotted from too much rain this spring.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Mar 2009 Posts: 10 Member | Member Joined: Mar 2009 Posts: 10 | I have looked all over this site for information regarding the treatment for cancer on the epiglottis. Has anyone ever gotten cancer there and if so what were the outcomes? Feb. 2008 I came up/down with an SCC stage 4 on the base of tongue. I had all the usuals, cleared several times, now with esophageal constriction, can't eat solids or liquids. Will be starting swallowing treatments/exercises next week. At last visit with Dr. he found a 'bug' on my epiglottis. Go back next week to get a Tx. Radiation is not an option. Surgery is ok with me. ? who has had this situation themselves? thanks been on a PEG ssince last Feb. Doesn't really bother me. thanks
I have found that attitude can make a world of difference.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Gnoled. your Dr can dialate your esophagus and stretch it. I get this done about every 3 months. I had surgery where 1/3 of your stomache is wrapped around your esophagus, but was left with Barretts esophagus. It isn't a bad procedure at all., Been gettin it done since 1996.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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