#98916 07-07-2009 04:01 AM | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | not quite sure what's affecting me at the moment.....discuss...I'm kidding, I know what it is, but do you know what I know? No clue really, it's 4am here and I haven't slept or have been sleeping well lately, so this is a bored post. Hopefully it made you smile
Be well
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | I had sleeping issues like crazy...it was not easy getting through it.
Now, Manny my pup wakes me up at 5am...sometimes he lets me sleep until 6am!...He's adding hours to my life! And it's a great thing.
Try to sleep buddy
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Paradiasical: like unto paradise - from Arabic walled garden. Yeah, vocab quizzes always make me smile. Perhaps you are watching too much Michael Jackson TV coverage if being awake at 4 evokes that attitude. Interesting column in Washington Post on his Mother raising him as a Jehovah Witness, who believe in an earthly "paradise" and eternal sleep instead of Heaven or Hell
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | What is a Michael jackson anyway? LOL He was unhappy with himself for being black, unhappy with how his boy changed colors when he tried to dye it, Really he wasn't anything but sad. Aguy with that talent and blew it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I felt sorry for him and what happened as he started to age some.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Everybody has a cross to carry...
Only mediocre people are always at their best...Okay, I know it doesn't fit here but I read it today and thought it was funny.
Last edited by Ray1971; 07-07-2009 08:04 PM.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Ray, the quote made me smile and I'll have to use it...frequently I'm sure. Still no sleep, landed me in the ER today but the body is still hangin on. I'm thinking I'm going way past the 48hr mark and am somewhere near 60 hours of not sleeping? Not quite thinking straight..i'ts also really hard to type.
Charm...no MJ for me buddy...but I did try to vaporize myself to sleep and sadly failed. The symptoms listed above are the results of my efforts, just thought I'd see if anyone else would catch on.
hope all is well...hope for sleep...
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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