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#98852 07-06-2009 09:26 AM
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Well, my PET scan is scheduled for Thursday at 1:00. Now that it is finally scheduled I am more nervous than anything. I can not wrap my mind around this. Likie many of yoy any little pain I have, I get worried about it. I know some of you have said that there is some preparation involved before having a PET. What is that preparation? I was just told that I could not have anything to eat or drink 6 hours prior to the scan and had to drink 16 ozs of water one hour before the scan. Is there anything else that some of you did?

Last edited by walknlite; 07-06-2009 09:26 AM. Reason: typos

Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #98856 07-06-2009 11:56 AM
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I received detailed instructions esp diet etc prior to PET SCAN and a warning of zero exercise 24 hours before. Here is a link to a list of common PetScan preparations, which I did before mine PetScan diet/prep
Relax, it's easy. the hard part is the potential false positives. Push back on the radiologist if you don't understand it, I had them do the entire report over on one of mine.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #98857 07-06-2009 12:18 PM
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It is normal to freak out at anything and everything**. I almost convinced myself that I had a problem about 2 month out of radiation, when I got a lot small blisters (roof of mouth) every time I was eating something.. (=big nothing, minor salivary glands working again)

Re Pet
1) no exercise and NO running around and hurrying before the scan. This includes getting to the center.
2) you may get an oral contrast agent to drink before the scan (for CT)
3) they will measure your blood glucose level and if ok inject radioactive glucose. No big deal, do not freak out because of the strange syringe.
4) you the rest for 45 minutes or so. Try to sleep, you should not talk
5) then the scan you, try to stay still and do not move your tongue/chew or swallow too much. Unless they tell you otherwise breath normally.
Depending of the scanner this should take 20-30 minutes.
6) then get coffee etc!

Best!

M

** of course that presumes that I am halfway normal...



Last edited by Markus; 07-06-2009 12:36 PM.

Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #98859 07-06-2009 12:34 PM
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I only instructions I have been given were to wear loose fitting clothing, no excercise 24 hours prior, and nothing by mouth 6 hours before the scan.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #98887 07-06-2009 06:41 PM
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Take something to read during the 45 minutes. I have had it a few times and never could sit still so I took a book and another time a poker machine. Just whatever you enjoy that you can do sitting quietly.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #98889 07-06-2009 06:49 PM
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Charm and Markus, thanks for the info.

My center has never given me all these specifics but thankfully from being an OCF member, I know this info.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #98893 07-06-2009 07:04 PM
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Jim,
they turn down the light where I go. Your are supposed to rest (sleep if possible) no talking, no chewing etc. ... nothing that may increase the chance of a false positive.

M



Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #98904 07-06-2009 09:02 PM
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I was able to pick a dvd and watch that for about an hour before the PET scan.... go figure!!

It was Robbie Williams in concert - so I was singing my heart out - no piece and quiet for me.

Hmmm sure makes me wonder about some of our facilities here...nothing would surprise me anymore that is for sure

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Karen Rose #98914 07-07-2009 03:40 AM
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The hardest part of the PET scan is a tie, waiting for the results or dealing with the false positives...I can't pick which one sucks more.

I worry about every little pain as well, thinking "this is it" at any little lump or jaw pain that I experience...My ENT told me to stop torturing myself and to keep the "F" off the internet sometimes...if only he knew. I love that guy though.

Be well
Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #98921 07-07-2009 05:32 AM
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I was also told to remain totally quiet and close my eyes while I waited in my semi dark room.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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