#98805 07-05-2009 02:30 PM | Joined: Feb 2008 Posts: 19 Member | OP Member Joined: Feb 2008 Posts: 19 | Ok, so it's back, had to have a node removed from my neck again, positive...Now I'm in the whirlwind of tests etc. The doc's are starting rads and chemo (5-FU and Cisplatin) on the 13th of July...my question is why do I have to be inpatient for the 5-FU, doc said that its infused over 96hrs. and that I need to be there for that. Isnt there an infusion pump or something, I'll be at the hosp every day for rad's anyway! A bit of help here would be appreciated
51 yr old female...dx 12/28/07, partial gloss 1/23/08, nd 3/5/08. Opened the neck AGAIN, 5/21/08. Non smoker, occasional drinker. Additional node pos. 6/26/09, Starting rads and chemo (5-fu, Cisplatin) 7/13/09 T1N2MO. Almost 2yrs out of treatment and feeling great....
| | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jan 2009 Posts: 253 | I had 5-FU, Cisplatin and Taxatere on a Monday at the hospital for 8 hours and then a fanny pack (infusion kit) for the remaining 4 days of the week. It was removed on a Friday. So I don't understand why you need to stay in the hospital. I'd ask!!!
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0. Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09. OCF member/supporter
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Pookie,
Where exactly was your primary?
Sorry those nodes were positive and sorry that you will have the chemo/rad but the good news is this Tx will most likely kill all the cancer remaining forever!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | That course of chemo is pretty intense. They probably just want to keep an eye on you to make sure your side effects are OK and that your fluids are regulated.
Sorry you are going through this!
K
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Feb 2008 Posts: 19 Member | OP Member Joined: Feb 2008 Posts: 19 | My primary was on the side of the tongue not too large, but due to the depth, had a nd, of the many nodes removed one was positive,small and pretty high so no further treatment. That was March 08, had been clear since then until I noticed a lump in my neck pretty much right at the bottom of the U of my scar. Nothing on the tongue, having a PET scan tomorrow. I am not the "typical".... non smoker (except I grew up in a house of smokers where you could cut it with a knife) social drinker, neg for HPV.
51 yr old female...dx 12/28/07, partial gloss 1/23/08, nd 3/5/08. Opened the neck AGAIN, 5/21/08. Non smoker, occasional drinker. Additional node pos. 6/26/09, Starting rads and chemo (5-fu, Cisplatin) 7/13/09 T1N2MO. Almost 2yrs out of treatment and feeling great....
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Pookie, Actually you are a "typical" OC patient as lately we are seeing a lot of people who present themselves just like you, i.e., non smokers, young(er) and HPV negative. There now seems to be 3 distinctive "typical" OC patients coming to this site, 1. Tobacco users, Primaries everywhere except the BOT and Tonsils and HPV-, 2. Non tobacco users, Primaries BOT or Tonsils, younger than group 1 and HPV+ and 3. Non tobacco users, Primaries usually in the tongue, younger than group 2 and HPV-. These are just my observations.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Oct 2008 Posts: 49 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2008 Posts: 49 | Pookie,
My hubby had the same treatment as you, only the 5FU was given by infusion pump AT HOME with visiting nurses removing the pump. You should check this out; possibly you have some other health issue? (diabetes, etc?) If not, talk to them. Possibly your insurance requires that you stay in the hospital.
Best regards!
Donna
Caregiver to Hubby,Stage IVb, SCC to left tonsil, Mets to nodes, Tonsillectomy, Cisplatin,Taxotere,5FU x 3, IMRT 33 Rads + Carbo x 6, RND 03/09--Dx NHLymphoma 04/09, CT of chest, stom, pel--all clear, 05/09 Pet--all clear, 08/09 Pet--all clear
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