#90704 02-25-2009 02:50 PM | Joined: Feb 2009 Posts: 4 Member | OP  Member
Joined: Feb 2009 Posts: 4 | Hi, I am 41 Non Smoker, Non Drinker but have had HPV since Age 23. MRI ordered by Otolaryngologist showed 2.5cm Tumor in the Upper Aspect of the right Submandibular Gland. 10/6/2008 Had Surgery to remove gland with 8-9 Cervical Lymph Node Neck Resection. Surgical Margins are close but neither Positive or Negative. One Lymph Node sent for Frozen Section during Surgery was Benign. Pathology shows Mucoepidermoid Carcinoma- Intermediate Grade and Stage is T2N0Mx (Perineural Invasion & Lymphovascular Invasion Present). Panendoscopy during surgery was absolutely clean ("not even a pink spot"). Lungs Clean, Brain MRI with Gad clean. Did IMRT (7000cgy 35 treatements) to Tumor Bed, adjacent Lymph Nodes, Clavicle and the Perineurals in Skullbase as precaution. Is anyone out there who has similar experience as my situation is rare? Most MECs occur in Parotid Gland. Any info or contact would be encouraging. I can't seem to find anyone out there. Thanks and God Bless.
Last edited by asadqureshi; 02-25-2009 04:37 PM.
10/6/2008 Surgery to remove right submandibular gland with 2.5cm MEC-IG Grade and Neck Resection (8-9LN)1LN Negative. Complete Panendoscopy Clean including Lungs. Brain MRI Clean
Patholgy- T2,N0,Mx (PI and LV Invasion Present)
11/17/2008-01/12/2009 IMRT (7000cgy)icluding PN SkullBase
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I am sorry, what is an MEC, PNI and LVI?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2009 Posts: 4 Member | | OP Member
Joined: Feb 2009 Posts: 4 | Hi,
Maybe I should change that. MEC is Mucoepidermoid Carcinoma- Intermediate Grade; PNI (Perineural Invasion); LVI, Lymphovascular Invasion
10/6/2008 Surgery to remove right submandibular gland with 2.5cm MEC-IG Grade and Neck Resection (8-9LN)1LN Negative. Complete Panendoscopy Clean including Lungs. Brain MRI Clean
Patholgy- T2,N0,Mx (PI and LV Invasion Present)
11/17/2008-01/12/2009 IMRT (7000cgy)icluding PN SkullBase
| | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Type mucoepidermoid in the search box at the upper right of each message board page. You'll see several pages of postings. You can click on the names of the posters to get their e-mail addresses or send them a private message.
And welcome to OCF.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | [quote]I am sorry, what is an MEC, PNI and LVI? [/quote]
I'm reminded of how daunting this group seemed at first with all the medical "letter-jargon" like dx, tx, rx, etc., in addition to the more or less HNC-specific stuf like XRT, IMRT, free flap, BOT, ND, etc.
asadqureshi, you have turned the tables on us, for sure! <g>
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Mar 2009 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2009 Posts: 54 | I have the same cancer you have. MEC of the Rt Submandibular gland. I am currently recovering from my neck resection. I had a nerve excised that left me with the rt half of my tongue paralyzed. Also lose of feeling rt cheek. I'm hoping that will get better. I am a non-smoker, non-drinker, HPV neg. I have been taking immunesuppressors for a number of years and wonder if that has any bearing. I am unable to function without them.
Sweetpea
********
2/09 MEC Rt Submandibular Gland,Tumor Exc,age 68; 4/09 Rt Neck Resect, Excise Rt Lingual Nerve, 10 nodes; 1 month later- Lge Abscess Drained 5/09; 4 more cancers, final path report; 6/09 IMRTx33
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