#84840 11-26-2008 10:57 AM | Joined: Nov 2008 Posts: 12 Member | OP  Member
Joined: Nov 2008 Posts: 12 | I completed radiation treatment three weeks ago. I am experiencing the mucous symptoms many have posted. I am also afflicted with a sore tongue. The periphery of the tongue feels "raw" or "burned". There are no visible lesions, and while some have wondered if I am afflicted with thrush, I am not. Some have also suggested radiation "backscatter" from a metal crown, but I have none. Has anyone else experienced this condition? Is it a side effect of the "burn"  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | There are many molecular changes brought about by the radiation in the oral cavity and even though I didn't share this particular post Tx symptom, having the symptoms you described certainly can not be excluded. IMUPO (UnProfessional)
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Oh yeah - I had blisters on both sides of my tongue and it was very painful. It took a long time to heal. During some stages the sides of the tongue was just a little more red than usual. I had thrush many times as well but it was entirely different from the sides of the tongue issues. The tongue gets slammed pretty hard when getting irradiated for tonsil cancer.
It will heal eventually.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Charlie, my tongue is the most sensitive part of my mouth. It seems everything I try to put in my mouth makes it burn and some things make it burn very bad. I just figure it's another sideeffect we have to put up with.. I even hate to eat but force it. I'm just glad to be here to feel it I guess.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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