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Joined: Nov 2005
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Jim, there used to be some cigarettes named "Mule Shit, not a fart in a carload". I actually smoked one and it tasted like it!!

They were apparently replaced by the higher quality Horse Shit cigarettes, "Horse Shit Cigarettes are made from the finest grade of domestic and imported horse shit obtainable. Only fresh mild horse shit is used. NOT MULE SHIT. And they are roasted to keep that mild, sweet taste."

http://arbroath.blogspot.com/2006/08/genuine-horse-shit-cigarettes.html


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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Rita,

My diagnosis changed how I look at our food supply and the choices that I make. This second diagnosis and treatment has made significant changes in what I can eat - probably not so much what I WANT to eat. I now look at supplements and try to buy organic when it is not cost prohibitive. I buy a lot less at the grocery store so I can buy organic milk and things like that. I have almost always had a garden, but since I live near farms I can only control what I put on my garden.

I had quit smoking for a year when I was diagnosed in 2006. I also used to drink a lot of beer - I liked it. I had an unsually stressful year the year before I was diagnosed - divorce, everything ugly that goes with that, moving, changing jobs. I have wondered if that effects whether you get cancer or not. I have been told by someone that the lifestyle choices I made did not cause my cancer - some people get cancer, some don't. I would do a lot of things different in retrospect, but all I can do is take better care of myself for the future.


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
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i have heard smoking for the older generations did not do as much harm many times on their systems because they did not have all of the chemical preservatives on the tobacco that is on there today - in fact many of the old timers rolled their own tabaccy to roll their own cigarettes.

I hear ya Jim - when I smell people who smoke now I think OH MY I didn't know I smelled like that LOL ... guess it is true when they say a skunk can't smell its own odor? LOL - So glad I don't smell like that any more smile

Just about everyone I know who did smoke has quit - at least of those I hang with ... I think only 2 of my relatives still smoke and I don't think I have any friends who smoke - and only a couple of neighbors have I seen smoking ... I remember when it was so popular - now it is more rare than common - and THIS IS A GOOD THING !!!

I too catch myself thinking of a smoke now and again and then it dawns on me those days are gone and I think to myself - dummy! LOL ... but I really did not go thru any withdrawals at all this time when I quit - I guess because I was so determined whereas in the past I wanted to but didn't want to if you know what I mean ... so all it took was feeling irritable and I would start back up again ... but now I figure it would be the most stupid thing I could do on earth to start again after this long without one - not only for health but because I conquered it so why go thru that all again.

I remember my uncle was a heavy smoker - got emphysema and would still smoke till his dying day. I remember walking in and seeing him remove his oxygen mask to inhale a smoke .... so sad ... would probably still be with us had he not smoked... but hindsight is always 2020


Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.

===============================

"Those who think by the inch and speak by the yard, should be kicked by the foot."


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I think the most profound change in my life has been that the biggest innocence we all carry from birth was shattered when I was told that I had to have surgery, radiation and chemo and after all that I only had a 60% chance of living for 5 more years. To this day if I verbally tell that story to a group or a camera I swell up like a baby. Whenever I read about someone Dx'ed with cancer I feel those emotions as well. It's been 31 months since I was Dx'ed and if anything my emotions are stronger.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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[quote=azcallin]
I remember my uncle was a heavy smoker - got emphysema and would still smoke till his dying day. I remember walking in and seeing him remove his oxygen mask to inhale a smoke .... so sad ... would probably still be with us had he not smoked... but hindsight is always 2020 [/quote]
Likewise my Dad, emphysema and smoked 'til he died (aortal aneurism), but he refused to use oxygen because he believed it would make his lungs atrophy (as if they weren't already doing that!).

I visited the radiation center the other day and in the patient's parking next to me was a vehicle with the ashtray literally overflowing with butts.

Back when I smoked (for eight years), I tried ripping the filters off some cigarettes and they sure tasted nasty compared to those blended to be without filters.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Joined: Jan 2008
Posts: 706
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My sister who is 38 smokes like a chimney. My father died at age 62 due to heart failure and emphysema. Her father in law died a horrible death from lung cancer. Now my husband. I guess she'll never learn and it breaks my heart.


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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It's hard to describe the difference not smoking makes in ones life. The feeling much better, the breathing better, taste of food and especially in the house. I did my smoking in the basement with an aircleaner running. Now without tha polluting the air, the house smoke free and smells great.Pete, You had me laughing on the Mule Shit one. That is one I never tried, but did bugler, prince albert and corn silk.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Like a lot of people here I stoped smoking a few days before surgery and after just over 2 years have not had another cigarette. Like all addicts I think it would be dangerous for me to have even 1 as I think that may start me back on that rollercoaster.
Like Jim, Rita, Pete and others it is great that I now have an apartment that I am not embarrassed to open the door to. Mind you I don�t recall noticing the smell then but I do now if I even walk outside a building where people are standing in doorways smoking. Also I was a heavy smoking and had that terrible morning cough which is now gone. Lot�s of other positives but have to also mention the extra cash smirk
I used to buy a carton at the supermarket with my groceries and now that bill still amazes me at the check out as it would be at least � of what I would have paid.
For me that is only one of the changes and I will maybe list some more another time.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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I've been told that the first one tastes horrible, the second in neutral and the third has you hooked again!


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Joined: May 2002
Posts: 2,152
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Trust me, the first one tastes GREAT, the second even better and you're right you are hooked again. Don't even think of going there.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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