| | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | I too was left tonsil and positive two lymph nodes. Find the best surgeon that you can find for the neck disection. Forgo the generalist and go to the best cancer center for the surgeon that does this everyday. He might be attached to the best radiation oncologist that you can find. If not, find him. If you need any help, I will find out for you from my Docs at Beth Israel in NY. Finding the most experienced will help you live into your 80's and suffer the least side effects. Call me at 732-687-3518 if you need a referral from my Docs. Also have it tested for HPV. All the best. Rob
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
| | | | | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | Go to OHSU or another teaching facility.
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Welcome back Mark... we've missed your wisdom around here.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Hi Jeff, Welcome aboard and good luck in your war. My cancer started in my left tonsil as yours is. If you have the time go to the BLOG section and read MY WAR AS BEGUN, here I wrote a journal about my personnel War with this enemy and hopefully there is a little advice for you. Good Luck in your war and God Bless. Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2007 Posts: 61 | Jeff,
I had tonsil cancer and ended treatment a year ago. No Chemo; just removal of the tumor and radiation. I have very, very minimal side effects now (drier throat and I sleep more). I never stopped working completely as I had home access to my work PC. Here is a list of the number of hours I put in. Week one was my surgery. I could of worked more, and I'm glad I didn't. Focusing on getting better took most of my energy and limiting my hours was the best decision for me.
0 removal of tumor
0
7 removal of 2nd tonsil (not cancer)
14
14
12 radiation started
8
3
2
8
6
2
7 radiation ended
2
7
5
6
28
17
20 "cooking" stopped
20
20
20
20
20
30
30
29
30
30
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
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