#68267 01-23-2008 03:06 PM | Joined: Aug 2007 Posts: 36 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 36 | Hi Everybody,
I've not been here for awhile. My parents went to Arizona for January so I am without my charge...Very odd...
Dad will have his scan Feb 6th to see if the treatment worked. He is still not swallowing or eating since Sept and still wears the ostomy over his tube. At Christmas his color was better.
Nothing has really happened or changed. The relief has only been that his condition is consistent.
I love you all and I'm still in the totally "pissed off stage" of this disease.
Mariam
Caregiver to father,Frank -Tonsil SCC spread to base of tongue 2 lymph, T2N2M0 stage 4a, IMRT 35x, Erbitux 8x-stopped after 5 due to thrush infection and strp infection in PEG,diag Aug 07 tx concluded Nov 8 07 PEG issues Inpatient Oct 8th-Nov 8th.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I think it's great he's holding his own and not losing any ground. A lot of us would be glad to say we were doing the same. I too am pissed at this cancer and how it's trying to take charge of my life. I shall be the victor.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2004 Posts: 104 | Hi Miriam,
I'll bet it is odd to have this time to yourself.
I hope your parents enjoy the warmth of Arizona, sounds nice!
I'm with you in the "totally pissed off stage"!
Vent away girl, I'm with ya!
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"
| | | | | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Miriam, Please treat yourself to some quality time on your own, and hooray for the fact that your parents could go to Arizona!! Wishing you and them well. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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| | | | | Joined: Aug 2007 Posts: 36 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 36 | Thank you JAM Dell and EZJim,
I had an exhibit while they were gone and have been busy but am very depressed (like sometimes can barely string a sentence together). My reaction to this whole thing has been delayed, partly because I was so active and needed during treatment. My only close friend in town has had bad news about her lung cancer and I am bracing myself for this year with her. (I take great delight that she and I can still share food and drink, something I really miss with Dad who has treated me to the greatest meals of my life.)
They loaded up a million cans of food and drove from IL to AZ! They are world travelers and just saw this situation as a small hitch...Pretty cool really.
They'll be back soon for the big scan on Feb 5th or 6th.
Caregiver to father,Frank -Tonsil SCC spread to base of tongue 2 lymph, T2N2M0 stage 4a, IMRT 35x, Erbitux 8x-stopped after 5 due to thrush infection and strp infection in PEG,diag Aug 07 tx concluded Nov 8 07 PEG issues Inpatient Oct 8th-Nov 8th.
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