Previous Thread
Next Thread
Print Thread
#6506 11-18-2005 08:31 AM
Joined: May 2003
Posts: 928
Marica Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: May 2003
Posts: 928
Hi All,

I just found out this is

" Mouth/Oral Cancer Awareness Week "
in the United Kingdom.
With lots of info available to the public.

Do we have this here in the USA?
If yes, when is it?
If not.... can we make it happen?
Marica


Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
Hi All
There has been a terrific response from the media over this. Oral cancer sufferers have been on the TV, giving talks in school, trying to educate people about the causes of oral cancer.
So if us Brits can do it I'm sure the Yanks can do it better!!!!!!
Sunshine... love and hugs
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
Joined: Mar 2004
Posts: 117
Gold Member (100+ posts)
Offline
Gold Member (100+ posts)

Joined: Mar 2004
Posts: 117
Marica,

There is an Oral Cancer Awareness Week in April every year. Next year I believe it is the week of April 17-21.

Barb


SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
Joined: May 2003
Posts: 928
Marica Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: May 2003
Posts: 928
Thanks Barb,
I wish we could get as much publicity as the UK seems to get!
Marica


Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
Joined: Mar 2004
Posts: 117
Gold Member (100+ posts)
Offline
Gold Member (100+ posts)

Joined: Mar 2004
Posts: 117
Well, in New York City, a group of teaching hospitals and dental schools has formed a group called the Oral Cancer Consortium and they do free oral cancer screenings on the Thursday of that week at different sites throughout the city of New York, the state of New York and New Jersey. The get some media attention on the most watched news station in New York City, newspapers, etc., and have some success. This year they are really trying to make it much more successful -- significantly increase the number of screenings done -- and I am trying to help them.

You could bring some attention to it in your area by contacting the health reporter at your local paper (if you are in Atlanta, may this might not work, but if you are in a smaller community, it might), letting them know about oral cancer awareness week, telling your husband's story, how important early detection is, tell about the oral cancer foundation. Reporters are always looking for stories and they might take you up on it and help spread the word about early detection.

Give it a try -- if we all try, we could make a big difference.

Barb


SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
Joined: Mar 2002
Posts: 4,916
Likes: 63
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,916
Likes: 63
I know people tend to visit the board here regularly but frequently neglect to wander around the tons of pages of the main web site. http://www.oralcancerfoundation.org/events/index.htm

Please note that I have spent alot of time via OCF to asssemble many of the organizations you see listed here. While I feel it is important to make this one week a big splash, I am concerned that as we build this, oral cancer gets forgotten the rest of the year by just about all these participants. Don't forget if you recruit a hospital, dental school, etc. to tell then to contact OCF for the literature to hand out during their screening event., and informatikon we can provide them about how to hold a successful event.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,916
Newest Members
TZwicker, Mareea, Crzyborgs88, Chevymudnut, Charlsena
13,222 Registered Users
Forum Statistics
Forums23
Topics18,209
Posts197,040
Members13,222
Most Online614
Jul 29th, 2024
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5