#6308 10-16-2005 02:17 AM | Joined: Oct 2005 Posts: 10 Member | OP  Member
Joined: Oct 2005 Posts: 10 | This week I have my monthly follow-up visit with my Chemo doctor and Radiation doctor. I'm in the process of compiling a list of questions for them. Any suggestions from the members would be appreciated. Thanks! Tami's Mom (Susan) 
Susan (aka Tami's Mom) - BOT SCC Stage T1/N1= Stage 3 dx 6/27/05 treatment IMRT & chemo (Docetaxel, Cisplatin, 5FU) ended treatment 8/22/05
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#6309 10-16-2005 02:32 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dear Tami's Mom.
Please post more details of what stage of follow-up you are in. Has radiation been scheduled? What type and why? What type of chemo drugs are you suggesting, How long will I receive them? How often do you scheduls scans and what type of scans will they be and why? What was the staging of my cancer?
These are some of the ones I would ask in hindsight.
Best Wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#6310 10-16-2005 11:31 PM | Joined: Oct 2005 Posts: 10 Member | | OP Member
Joined: Oct 2005 Posts: 10 | Sorry, I should have been more specific. I was diagnosed with base of tongue cancer in late June (Stage 3). I have already completed all my radiation and chemo treatments at the end of August. I am now trying to overcome the side effects of the radiation and chemo.
Tami's Mom
(Susan)
Susan (aka Tami's Mom) - BOT SCC Stage T1/N1= Stage 3 dx 6/27/05 treatment IMRT & chemo (Docetaxel, Cisplatin, 5FU) ended treatment 8/22/05
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#6311 10-17-2005 12:17 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | Susan,
Some of the best questions are symptom specific. For instance, I have ________ as a symptom, my goal is __________, what do I need to do to achieve this goal. (fill in the blanks for 1...pain, xerostomia. fatigue, etc. and for 2, ...being pain-free, having a moist mouth, being able to ride a camel across the Sahara, .........WHATEVER!) Those are questions which don't take a crystal ball to answer, as so many open ended questions do (..."When will the pain go away, will I ever have a moist mouth again, will I ever be able to ride a camel across the Sahara?.....) Just make sure that whatever questions you ask, the doctor has a reasonable chance of being able to answer without calling in a psychic. Not trying to be flip, honestly, but so many folks (me included) want guarantees and reassurance that a good clinician won't be able to answer even on a clear day.
I wish you wellness, strength and length of days,
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#6312 10-17-2005 01:23 AM | Joined: Aug 2005 Posts: 129 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Aug 2005 Posts: 129 | Since this is my Mom who posted the topic/question I would like to chime in with my questions  What type of follow up tests we should anticipate and or expect both short term and long term. When should a dr. refer a patient for a node biopsy? Which dr would be responsible for this decision and who would do the test? Thanks Tami
Tami
Mom has Bot scc stage T1/N1= stage 3 dx 6/27/05 treatment IMRT & chemo (docetaxel, cisplatin, 5FU) ended treatment 8/22/05 Cancer free as of Feb 2006
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