Previous Thread
Next Thread
Print Thread
#60183 01-26-2007 02:51 PM
Joined: May 2006
Posts: 20
Member
OP Offline
Member

Joined: May 2006
Posts: 20
Question- how long do people stay on meds after TX? I am 8 months out after radiation and I have 2 main issues: dry mouth and pain in the area that they did by boost.

So I have been on Lortab for about 7 months (I was on morphine during radiation-no chemo) and I wonder how long is too long? Or what is normal?


Female, 36 yrs. old. Stage 1 tongue cancer; no lymph nodes; surgery & radiation
#60184 01-26-2007 03:34 PM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
I don't personally think there is a too long. Pain management is a quality of life issue, and you need to be on the meds until you don't need them... then eventually reducing the dosages over a period of perhaps a month to get off them altogether. Leaving them too soon sets up its own set of problems. I was on pain meds for a year, so without knowing other


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#60185 01-27-2007 02:23 AM
Joined: Nov 2006
Posts: 95
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Nov 2006
Posts: 95
I almost wrote in yesterday with a similar question for my husband, but he has been out of treatment a lot less long - radiation ended 12/5/06. He had been doing better for a couple weeks. He had been up and about and out of the house and back doing his camera thing on eBay.

He had a great CT scan on Tuesday 1/23/06 which perked us both up. But this week he has felt pretty miserable again - really can


Barbara S
C/G to Michael age 64, stage 1 base of tongue SC cancer and a stage one for a couple lymph nodes, diagnosed 09/12/06, IMRT radiation 10/24/06 to 12/05/06 , last PET / CT scan 11/7/11 - still cancer free!!!
#60186 01-28-2007 12:14 PM
Joined: Nov 2005
Posts: 1,128
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
All of the Docs I have talked to have said the trick with pain meds is to stay ahead of the pain; what you can do if you feel you've had enough is to cut back just a little and see what happens in a week (some meds build up in your system and take a while to reduce; the reverse is also true which is why one has to stay ahead of the pain). If that's OK, then reduce again and wait.

Patience is a virtue here, and I would advise marking the dates/dosage on a calendar because it's easy to lose track when you are on these kinds of meds.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
#60187 01-29-2007 06:56 PM
Joined: May 2006
Posts: 20
Member
OP Offline
Member

Joined: May 2006
Posts: 20
Thanks everyone for the feedback. It was very helpful. My ENT wants to get me off the Lortab and although my dosage has decreased since treatment ended I still have to take it for pain in my mouth and right side of my jaw. Motrin, even 800mg, is just not enough. I know everyone heals differently but it is good to know that I am not crazy or unusual to experience pain at this point in time.


Female, 36 yrs. old. Stage 1 tongue cancer; no lymph nodes; surgery & radiation

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5