#56933 09-13-2005 10:12 PM | Joined: Sep 2005 Posts: 28 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2005 Posts: 28 | Colleagues I would like to share my feelings with you one month after treatment finished, early days I know but to me its a milestone.
Its day 28, one month ago radiotherapy finished, the induction of pain ended and recovery began.
I remember that last session, I was in hospital feeling pain, finding it difficult to eat, sleep, and drink, talking was hard and my body had been through hell. My mind was confused, would the pain all stop tomorrow because of the therapy was over alas no came the soothing responses of empathtic nurses looking into my eyes. I was attached to a syringe driver, a nasal tube and pain was high until the morphine cut and stopped the pain taking over my weakened body. I looked ill, people could tell then man had cancer and was unwell. My body was frail and the weeks of inactivity had made me weak. I had nasal drip and it made me cough up blood everynight and my mouth was full of mucus and a thick horrid phlegm. My bed clothes would show tale tell signs of large patches of fluid dribble through the night as my mouth dried out.
One month on, I am sleeping, at least 6/7 hours passes my body each night. I can eat, soft foods only but back in control of my own destiny in the kitchen. The only pain I face is through talking because of a radiation mouth sore which is going. The tubes and syringe driver are gone as is the morphine. The look in my face is of being content and my eyes no longer have that zombie look. My body is beginning to find a definition and walking is now becoming easier as distance increases. The nasal drip that would create so many problems is gone. I can swallow without bringing drinks back up and the saliva in my mouth is returning and the night dribble has gone. The morphine has gone and so as the anti sickness medication. I feel stronger everyday and able to lift, walk, laugh and yawn without feeling guilty, weak or in pain. The mucus has gone replaced by saliva. I no longer count off days and look forward to return to normality because I know I am on my way already.
I know I am not fully over the side effects of chemo or radiotherapy but what I do know is that I am 100% better than I was this time last month, and this time next month will 100% further on.
On the 26th September 2005 is my next big day, the joint head and neck clinic where I find out just how well the treatment has gone, its a day I am looking forward to as I know I have made progress and I know the treatment has worked!
Steeplechase
SCC Left tonsil removed, T1N2/3 May 2005, left radical neck dissection and wisdom tooth removed, 32 lymph nodes removed, 1 infected. 33 Fractions of RT, 2 doses of Cisplatin and a NG tube for 4 weeks! Treatment ended Mid August 2005.
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#56934 09-14-2005 01:54 AM | Joined: Aug 2005 Posts: 129 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Aug 2005 Posts: 129 | Thanks for your story. I will email it to my Mom and feel it will inspire her to hang it there...the light is at the end of the tunnel. Good Luck on the 26th. I look forward to your posting on that day! Tami
Tami Mom has Bot scc stage T1/N1= stage 3 dx 6/27/05 treatment IMRT & chemo (docetaxel, cisplatin, 5FU) ended treatment 8/22/05 Cancer free as of Feb 2006
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#56935 09-14-2005 10:18 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Sounds great Nigel
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#56936 09-14-2005 11:20 AM | Joined: Jul 2005 Posts: 150 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jul 2005 Posts: 150 | Yeeeaaahhh Nigel! I will share with my dad.
Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
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#56937 09-14-2005 12:13 PM | Joined: Sep 2005 Posts: 28 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2005 Posts: 28 | I forgot to add that the burn, painful, red skin that exposed raw flesh on my neck and shoulders has given way to a light pink patch fully healed and just needing daily cream.
Steeplechase
SCC Left tonsil removed, T1N2/3 May 2005, left radical neck dissection and wisdom tooth removed, 32 lymph nodes removed, 1 infected. 33 Fractions of RT, 2 doses of Cisplatin and a NG tube for 4 weeks! Treatment ended Mid August 2005.
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#56938 09-14-2005 12:15 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Nigel What an uplifting post! You are one tough cookie, I am glad the depression you described in your earlier posts seems to have lifted a little. Lots of positive vibes coming your way for the 26th. Take Care Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#56940 09-14-2005 04:34 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Feb 2004 Posts: 261 | Kick ass! Your experience sounds a lot like mine last year. I hope all continues well! Erik
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#56941 09-26-2005 10:40 PM | Joined: Sep 2005 Posts: 28 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2005 Posts: 28 | 6 weeks on the improvement is still taking place. Yesterdays joint head and neck clinic confirmed that recovery is going well, and everything they expected to happen is happening with no adverse things at this stage.
My all important scan is booked for 3 months and I have to return each month.
I am able to eat more things now and the ulcers on my tounge are starting to get under my control. A long way to go but a positive!
Steeplechase
SCC Left tonsil removed, T1N2/3 May 2005, left radical neck dissection and wisdom tooth removed, 32 lymph nodes removed, 1 infected. 33 Fractions of RT, 2 doses of Cisplatin and a NG tube for 4 weeks! Treatment ended Mid August 2005.
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#56942 09-27-2005 02:10 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Awesome news Nigel....keep going, Buddy!!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#56943 09-27-2005 10:28 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Congratulations Nigel!
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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