#54134 12-09-2003 04:57 PM | Joined: Sep 2003 Posts: 31 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 31 | I am very angry at my father's radiation oncologist and am looking for some advice...
My dad finished radiation on Nov. 3rd. During treatment he was hospitilized for almost 2 weeks (very low WBC count, drug reaction, horrible mouth sores, etc.) He seemed to be doing better 2 weeks after treatment ended... he was awake more, talking much better, mouth healed, up and around, joking, etc. Then he seemed to get worse and worse. Now the swelling under his neck has come back in full force, his speech is barely understandable (he did not have surgery), he sleeps 24/7, and the mouth sores have gotten worse. We thought he was improving and now has taken 2 steps backwards.
Anyway... his first follow-up appt. with the rad. onc. was suppose to be today (9th) and the Dr's office called yesterday at 4 PM!!! to tell us that the doctor cancelled his appt. and isn't going to be back until LATE Dec. I find this completely UNACCEPTABLE!!! especially with his prior history - I would think they would keep a close eye on him!
I want to know if waiting this long (2 months) is normal and I am overreacting or should I be finding a new doctor to see him ASAP. We are all going nuts waiting to see the effects of the radiation and also wondering if & when he will need surgery (they could not do surgery prior to rad.) Any suggestions would be great! Thanks ahead of time!
Diana
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#54135 12-09-2003 05:16 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Hi Diana,
I would be furious too. This is a scary time for all of you. Your doctor MUST have someone covering for him while he is on vacation. Why don't you see if you can get in there ASAP? If not there is always the ER.
Good luck.....
God bless
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#54136 12-09-2003 07:14 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Diana, your father's case is really unbearable and the doctor is simply irresponsible. If he is occupied by something more urgent than his patient's life, he should get others to take care of your father. I can't imagine such thing happens in a civilized country. Judging from what you described, your father needs to be attended to asap. Can it be of help if you talk to the senior management of the hospital and get a solution? Time is important.
Karen stage 4 tonsil cancer diagnosed in 9/01.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#54137 12-10-2003 06:02 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | This is completely unacceptable and irresponsible at best. The doctor should have another doctor covering his patients during his absense. Did you ask abou this? If one is not available, please get another oncologist to intervene right now. This may be post treatment swelling, an infection that has taken hold, (which is dangerous) it may be a remaining part of the original cancer, if surgery was not done to remove the lymph nodes. DO NOT WAIT SEVERAL WEEKS FOR THIS PUTZ TO GET BACK INTO TOWN.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#54138 12-10-2003 06:59 AM | Joined: Sep 2003 Posts: 31 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2003 Posts: 31 | Thanks to everyone for your speedy responses!
1- Called Rad. Onc. and told them the situation was completely unacceptable and I wanted an appt. ASAP with another Dr. They were understanding and told me they will call back within the hr. with an appointment. We'll see!
2- Got an appointment for Monday with his other oncologist (chemo?)
3- Called main oncologist's office (sorry I don't know the proper terminology - surgery Dr.)and explained the situation to them - am waiting for him to call me back!
I will let you know how everything goes! Thanks again.
Diana
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#54139 12-10-2003 08:38 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Good for you!
Let us know how things turn out
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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