#49572 05-03-2004 03:51 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Rosie,
Glad you are speaking! You have inspired so many of us here on the board by what you have gone through and how helpful you were to Heather. I would definitely talk alot about Cati and how well she is doing. That alone will be such inspiration to others. You always speak from your heart and that will get you a good speach for this occasion. My prayers will be with you!
May 15th is my son's birthday, so I won't forget to pray for you!
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#49573 05-04-2004 02:05 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Rosie, Good for You!!!! Thanks for speaking...I will be thinking of you and praying for you on May 15th! We have a Relay For Life Walk here on May 21st, I was invited to walk in the survivor's lap and I plan on doing that! So grateful that I can!!! God Bless You!!!!!!!!!!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#49574 05-04-2004 07:01 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | My husband (my caregiver) and I sponsored a team last year to celebrate my one year survivor anniversary. It was the first time I had been at a Relay and didn't really know what to expect. It ended up being a very inspiring and awesome adventure for my whole family and the people I work with that came to join my team I was a little embarrassed to do the survivor walk, but as you are walking with other people who have survived hearing that word "cancer"and the teatments they have endured, it gives you an emotional high that continues for the whole Relay! The luminaries stay lite through the early morning hours and you realize how many lives are touched by this disease. All should try to attend and support!! Rosie, your sharing your experiences helps share the message that cancer touches more lives than just the patients. The families and caregivers should walk the survivors walk, too. As we certainly can't make the journey without you! My prayers are with you! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#49575 05-07-2004 09:32 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Thanks for all the suggestions and support. I think some of you have more confidence in me than I do, but I will certainly give it my best shot. Best wishes to all who will be participating in the Relay for Life and other walks and events this year. Hats off to you all! Rainbows & hugs,  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#49576 05-07-2004 11:13 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Rosie, now we know you can do it. You`re going to be keeping Heather`s memory alive and helping folks too. Just letting non professionals that home care is possible, you proved that ! I truly believe that our loved ones have left us behind to continue the fight, they were so brave and we are too!!!!! Love and Hugs, Dee | | |
#49577 05-08-2004 03:24 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Rosie, I have every confidence that you will know what to say and how to say it. It will be from your heart, and there is more than enough heart there to take care of the largest crowd.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#49578 05-08-2004 06:44 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Rosie, if I could get there to hear you speak I would. You are Heather's voice now and the world needs to hear. Good luck with it.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#49579 05-08-2004 03:28 PM | Joined: Aug 2002 Posts: 246 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2002 Posts: 246 | Rosie:
You don't need to be uplifting because dealing wth cancer is damn hard-just be the you we all know and love here at OCF. Remember the "rainbows and hugs" part which I think is your trademark. Share your soul and Heather's and when you give your talk and you will make a meaningful difference.
K-
kcdc
Wife of Dave,diagnosed with Stage III Tonsillar SCC,August '02
Modified radical neck dissection followed by radiation therapy
'There is glory and radiance in the darkness and to see we have only to look"
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#49580 05-09-2004 04:58 PM | Joined: Aug 2003 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2003 Posts: 71 | larryb-
I had a Relay for Life team this past February. It was the most awesome experience of my life! My husband is the survivor and we were just so overwhelmed with such joy and love by the 30...that's right THIRTY...friends and family members that joined our team. Our team raised over $5,500. We both plan on making this event a yearly thing...and my husband plans of being around as a survivor for many years to come. This year he was only able to walk the Suvivor's Lap...since he was just out of treatment...but next year he plans of walking many laps during the 24hr event. I learned and experienced the most love, support, and hope by being the chairperson for the "Survivor Booth" in addition to being a Team Captain. I wouldn't trade this experience for the world. No, I wouldn't wish cancer on anyone, but I must tell you the experience of Relay has been the "blessing in disguise" for my husband and me. I hope you had a great walk and will continue to walk whenever you can to support cancer research and to celebrate being a SURVIVOR.
Rosie-
As a caregiver I just want to say...just speak from your heart...the words will come and they will be PERFECT! You are the blessing in the lives of many and the angel that you are will shine through! Relax and remember everyone at a Relay event has been touched by cancer in one form or another...so they ARE your family...and will LOVE what you have to share.
Lorie
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husband diagnosed with tonsil cancer 8/03, left side, stage III, 7weeks chemo/radiation. Cancer free since 12/03.
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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#49581 05-10-2004 04:29 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Lorie,
Thank you for the words of wisdom and inspiration!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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