Previous Thread
Next Thread
Print Thread
Page 1 of 3 1 2 3
#49562 04-30-2004 11:26 PM
Joined: Sep 2003
Posts: 153
larry-b Offline OP
Gold Member (100+ posts)
OP Offline
Gold Member (100+ posts)

Joined: Sep 2003
Posts: 153
i'm off to a cancer walk today with the local support group that i attended. many friends in the group didn't make it, but some of us are still here. this is my first time, so it brings back emotions that were somewhat removed as i've been out of the group for about 9 months. the entire support group agreed upon the name 'Kancer Kickers' that was suggested by Jim. Jim won't be there today.

it's a warm day with no rain... around the local zoo & park. i think i'll hang out with the strollers, not the serious walkers.

who else has been to a cancer walk and what were your experiences?

cu,
larryb

#49563 05-01-2004 12:44 AM
Joined: Mar 2003
Posts: 62
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Mar 2003
Posts: 62
I will be participating in our Walk for Life this June. It will be my first one as well. The Foundation has turned this into a weekend event for the whole family with entertainment etc. The first night is the Survivors Walk followed by the lighting of the Luminaries around the track. Anyone can purchase a Luminary in memory of someone who has lost the battle or who is fighting the battle or survived the battle.
I helped with the Daffodil Sale this year and enjoyed that very much. We managed to raise $31,687.00 to be used for Research, Public Education Programs and Patient Services. I hope we will do as well with the sale of the Luminaries. I should add that this money was raised between 2 small cities in the South East part of the Province. The total population combined is about 16,000 people.
Like Larry I'd love to hear about others doing the same thing and your experiences.
David

#49564 05-01-2004 08:14 AM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
Larry,

I am truly sorry your friend Jim won't be walking with you. I can't imagine how emotional that time will be for you. Sending kind thoughts and lots of love your way.

I have participated in the Relay for Life here since my mother came here to live in 2000. I always shed a tear or two when the survivors get their special lap. Never would I have imagined being in that group. I have also purchased luminaries as David says for close friends and families who pass that year. It is so sad that every year for a while now I have had someone close succumb to cancer.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#49565 05-01-2004 10:41 AM
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
we don't have similar walks here in the UK..we have fund raising runs for research.. but yes we all walk with the shadows of our friends at our shoulder.. we send man into space but we can't get to grips with cancer...
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
#49566 05-01-2004 01:35 PM
Joined: Mar 2002
Posts: 1,140
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Mar 2002
Posts: 1,140
Likes: 1
Even in my small town, we have the Relay for Life, which goes for an entire weekend at a local high school track. I ran last year and will do so again this year. Weird, but I skipped the survivor lap because although I am, that is not how I identify myself. I am runner who USED to have cancer. My friends know, but I have always kept my business to myself, so I am not comfortable being part of the survivor group. Except here (grin). I highly recommend looking for a Relay for Life in your area. Lots of fun for a good cause.

#49567 05-03-2004 09:16 AM
Joined: Oct 2002
Posts: 546
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Oct 2002
Posts: 546
I have been asked to speak at our local Relay for Life event on May 15th about my experience as a caregiver. They have one survivor and one caregiver speak. This event runs from noon Sat to noon Sun and also has the survivor lap, lighting of the luminaries and other fun things going on. This is my first time for participating in this type of event. I hope I can do my 5-10 minute speech without breaking down. I have my doubts since it has only been 7 months and I'm still very emotional, but they don't have anyone else. They had a patient/caregiver team lined up to talk, but the patient just learned that she has to undergo chemo again so they both bowed out.

I'm not too sure yet what I am going to say. They bill this event as uplifting and a celebration of life after cancer. I told them Heather didn't suvive and I don't know how uplifting that is going to be, but I'll try. They want me to talk about how cancer affected the family, so I figure I can talk some about Heather's daughter Cati. Since she is doing so well, that may be encouraging for patients who have young children. I also plan to tell of how it brought some old friends back into our lives when they offered their support. Since we cared for Heather at home, I thought I could let people know that home care can be done by ordinary people. I figure if I could do it with no medical background, that may inspire other people to try also.

I am open to suggestions on what to say. Maybe some of you that have attended these events can remember what speeches you've heard and give me some tips. I haven't spoken in public for many, many years and can use all the help I can get!!! Thanks!

Rainbows & hugs, wink
Rosie


Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
#49568 05-03-2004 10:05 AM
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
Rosie
Go tell them lady... I don't think you know how much your common sense and caring means to us on this forum.. sometimes here it's what you DON'T say that is important.. when I'm down I set great store by your posts... so for Heather and for us go WOW them..
love and hugs
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
#49569 05-03-2004 10:17 AM
Joined: Apr 2004
Posts: 482
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Apr 2004
Posts: 482
Rosie: All of the things you mentioned are perfect for the speach you described. Just the kind of thing everyone there is likely to be interested in hearing. Only thing you might consider adding is the importance of a positive attitude as the battle is being fought. Regards, Kirk Georgia


Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
#49570 05-03-2004 01:35 PM
Joined: Mar 2002
Posts: 1,140
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Mar 2002
Posts: 1,140
Likes: 1
Oh yes, Rosie, definitely incorporate Kirk's suggestion about a positive attitude being important, for both the caregiver and the patient. I wish I could hear your address, as I am sure it will be absolutely terrific!

#49571 05-03-2004 03:50 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
Rosie,

You have already put into words exactly the message you want to relay and it is a beautiful one at that. Remember, the entire circle of family and friends gets the disease, not just the patient. I am sure Cati will be an inspiration to all of them just like she (and you) are to us. As I read your post I reminisced about my mother being here and reuniting her with a friend she hadn't seen for 50 years and how much love she enjoyed throughout her life. I know you will do an excellent job and if it gets emotional for you just listen in the background with all of us cheering you on...you go girl! You are certainly entitled to get emotional with all you have had to endure and live through. Remember we all love you and are standing behind you with our hands rested on your shoulder to give you all the support you need to deliver the message everyone should have the honor of hearing.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Page 1 of 3 1 2 3

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5