#46451 01-25-2006 12:26 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All,
I haven't been posting much lately and wanted to keep all my friend here updated.
I had another two scans in late December and got the results on Jan 9th. The MRI shows the tumor that returned in the original area has grown alot in the scans from 6 months earlier. In June it measured 26mm x 26mm x 38mm. The latest scan measures 31mm x 31mm x 50mm. It is behind the pech flap used to rebuild my throat after the first surgery in July of 03.
I have tried three different chemo drugs in the last year and a half. I have decided to end all treatment while I still feel OK rather than go on something that will make me ill during these last few months. They told me I would likely have between 6 to 8 months. I can't see the sense
of continuing treatment if all it will give me is a couple of more months. I have lost most of my hearing in my right ear. The scan shows fluid built up behind the right ear.
Thanks for understanding my decision,
Love Ya All, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#46452 01-25-2006 12:35 PM | Joined: Jul 2005 Posts: 6 Member | | Member
Joined: Jul 2005 Posts: 6 |
Sylvia
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#46453 01-25-2006 01:13 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Danny,
I'm holding you in my thoughts. You've been such a model of courage and hope in your fight and you are also a model of knowing when to let go, a completely understandable decision.
You were one of the people that was very kind and encouraging to me when I showed up all confused about the conflicting recommendations I ahd gotten about treatment. You were one of the people who advised me to fight it as hard as I can--a decision I have never regretted. From the bottom of my heart, I want to thank you for that again.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#46454 01-25-2006 02:27 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Danny, we love you.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#46455 01-25-2006 02:53 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Daniel:
I knew that you had a reoccurance. I didn't, however, realize the severity. I agree with your decision. Quality of life is of great importance equally with quantity.
See Ya soon...
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#46456 01-25-2006 04:10 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I will never forget when you first came on the message boards, it was very soon after I found this wonderful family. I admired you instantly because you were so open about your fear, something I had yet to face. Reading your posts made me realize how much courage it took to admit that we are afraid during a trial that requires the emotions that cancer demands of us. And then I had the honor of meeting you and your wonderful wife. My girls had heard so much about Danny Boy, I talked and talked about you. When I met you I felt like I had known you forever and you were the hit of our walkathon. My girls ask me at least once a week how you're doing and this news will make them very sad. I'm crying typing this. I'm so sorry it's turned out this way Danny, I wish I could do something to change the outcome. But I so deeply respect the courage you have shown and continue to show. I also agree with your decision, it's one I would make for myself if I am ever in your position. You offer a window into what may become some of our realities in the future, please keep sharing with us.
Love you,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#46457 01-25-2006 04:15 PM | Joined: Nov 2005 Posts: 79 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Nov 2005 Posts: 79 | Danny - I know you have been posting less since I joined the site but I am someone who has probably read almost all the posts that exist on this site. You have no idea how the insights and humour and shake recipe you posted in the last few years have helped my husband in the last few months.
Thank you so much for your generous sharing of knowledge and your model of positive thinking and abiding self-respect.
Much love to you and your family and friends.
Mary
Caregiver for John SCC left tonsil Stage III/IV dx Sept 05, tx started Oct 21/05 -IMRT 35, cisplatin 3 X 100mg/m2;completed Dec08/05.
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#46458 01-25-2006 06:11 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Danny,Please rest assured that,whether you are in this world or another, YOU are forever going to be part of many lives. You represent the best that the human spirit is all about: strenght, courage, resilience, fortitude, and love for your fellow man. You have touched all of us who are struggling with this disease and you have done it with unprecendeted grace and kindness. You have given so many of us the courage to meet the next day. You have our respect and love. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#46459 01-25-2006 06:25 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | I respect your decision Danny. Love to you and your family. Helen
RHTonsil SCC Stage IV tx completed May 03
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#46460 01-26-2006 12:48 AM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | Oh Danny Boy!
I am so sorry to hear this news, and so proud of the decision you have made. You continue to be an inspiration to me. God bless you and your family.
Sincerely,
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
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#46461 01-26-2006 01:52 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Dear Danny Boy,
my heart aches for you and your beautiful and loving family. It was one of my great blessings to meet all of you in Las Vegas.
I will keep all of you in my constant thoughts and prayers.
Love,
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#46462 01-26-2006 03:32 AM | Joined: Mar 2004 Posts: 98 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 98 | Danny Boy,
There are time in everyones life when we look back and think about someone that has made a differance in our lives. To me that person is you. You give so much of yourself to help others, even when you have problems of your own. I am so amazed at your strength and courage, We will continue to support you and be there for you no matter what your decsions may be. We all love you. I came across this and I hope its ok to post here.
Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
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#46463 01-26-2006 03:41 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Danny Boy, I love you so much. You are in my thoughts and prayers. God Bless you, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#46464 01-26-2006 07:17 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Danny,
With all you've had to face during the past couple of years, you've been an incredible example to hundreds of people here about making the most of every day we have. Thank you for everything you do here -- you continue in our thoughts and prayers.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#46465 01-26-2006 07:39 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Oh Danny,
I am so sad that the chemo could not hold this beast at bay. You have fought the fight as hard as you could and it bought you some extra time with your family and friends. I understand your decision to not make yourself so ill that you can not enjoy whatever time you have remaining.
You have been and will continue to be an inspiration to everyone one on this board and everyone you met in life. It was a joy to have met you and your family in Vegas. I hope this final part of your journey is easy. You will be in my thoughts.
In tears,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#46466 01-26-2006 09:07 AM | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | Danny,
I have such a heavy heart right now. You have been such an inspiration to all on this board. What an incredible man you are. Although I have never met you, you have left such an imprint in my life. Your strength and kindness has helped me cope through all I have had to endure with my husband's illness. Words cannot express my thanks to you. My thoughts and prayers are with you and your family.
Bless You,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
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#46467 01-26-2006 09:50 AM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2005 Posts: 663 | Danny,
There are no other words.....
We all love you dearly!
Thanks for being who you are!
With Love Always,
Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#46468 01-26-2006 10:23 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Danny Boy
You have cajoled, informed and supported me so much over past few years, so I will inform you that I love you, I will support you in any decisions you take and I will cajole you to enjoy your life and the love of your family..
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#46469 01-26-2006 01:34 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Danny Boy,
You have shown your bravery and strength in fighting this battle and I consider you a great winner already. Life is not measured by its length but the breadth and depth and I am sure you have led a very meaningful life by giving support and inspiring thoughts to people around.
Take care,
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#46470 01-26-2006 02:29 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | Thank you Danny. You have a huge heart. You have helped me from the first day I was here. I wish there wer'e words that could make physical changes for you. Your friend, Erik
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#46471 01-27-2006 09:34 AM | Joined: Feb 2004 Posts: 43 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2004 Posts: 43 | O Danny Boy, The pipes are calling... They're calling us all... Know well that you have helped many people, some you don't even know,like myself. We are all with you!! I sincerely hope that you can look back on Life with a sense of appreciation and touch of Humor... Please stay with us for as long as you can...There is no doubt That you are Good and have done Good for others...Thank You, Thank You !! Tom
SCC Tonsil Rt T3 N2b M0 side DX Jan 04 Tx 36 Rad 3 cisplatin Tx ending May 04. partial neck dissection july 04..... July 15,08 mets to liver Age 57...Did Methotrexate Sept 08. Now on a trial drug Panitumumab, Feb4,09 treatments stopped. going to Tibetan Medicine.
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#46472 01-27-2006 10:36 AM | Joined: Mar 2005 Posts: 20 Member | | Member
Joined: Mar 2005 Posts: 20 | What an inspiration you have been to so many.. hope you are now able to enjoy your time away from treatment and make wonderful memories | | |
#46473 01-27-2006 04:30 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Thank You all for responding to my news. I truly love each member on this forum. After reading your responses I feel at peace with myself. Thank you all for that. I'll keep posting as long as I can.
Love Ya, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#46474 01-27-2006 04:46 PM | Joined: Jun 2005 Posts: 53 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2005 Posts: 53 | Danny:
I was just scanning the boards as I'm having a tough time letting go since my sister passed away. These boards have been such a help and a comfort as I travelled this tough road with her. I was so sorry to read your post that things weren't going well. My sister and I had some good talks a couple of weeks ago - about how every single one of us whether we're healthy or sick is going to come to the end of this life at some point. I believe we'll be reunited with those we love and I look forward to meeting all of the people who have touched my life while I was here on this earth. You are truly one of those people. May God bless you and give you peace.
Robin
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#46475 01-31-2006 09:27 AM | Joined: Jan 2006 Posts: 37 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2006 Posts: 37 | Danny,
I'm a new member here and came across your post. Please know that my thoughts and prayers are with you.
Gino | | |
#46476 02-01-2006 05:12 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Danny,
You are the bravest, warmest and most caring person I have ever "met". In the short time that I have been visiting this board, you have earned my utmost respect. I fully understand your decision and hope and pray that you will enjoy the coming months. Your contributions to this board have helped so many people that it would be impossible to count them.
I continue to look forward to your email jokes which have been keeping me so amused for so many months.
You are an inspiration to us all.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#46477 02-02-2006 11:03 AM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | Dear Danny,
The words of D. De Haan came to mind, once the tears stopped...
"Oh, how we need support in times
Of suffering and despair-
Upheld with love by saints of God
Who understand and care"...
You, and all of the people on this forum are the saints who understand, please know how much we care.
Maria
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#46478 02-04-2006 11:05 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Heros live forever in the hearts of many both near and far. Though they may be strangers their hearts never lack a fire.
Til we meet again........
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#46479 02-05-2006 10:51 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Reading the replies to Danny's courageous post has brought tears to my eyes. What beautiful and loving human beings you all are.
Is it cancer that brings out this side of us? Maybe. Here it is our Danny. He receives what he selflessly gives.
Love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#46480 02-06-2006 06:45 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Thanks to all of you who have responded to my post again. One of the The highlights of my life has been to become a member of this forum and grow to love, support and offer what I can to help others. It gives one a completely different perspective on the meaning of life. I can't thank you enough for that.
Love Ya, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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