#46451 01-25-2006 12:26 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All,
I haven't been posting much lately and wanted to keep all my friend here updated.
I had another two scans in late December and got the results on Jan 9th. The MRI shows the tumor that returned in the original area has grown alot in the scans from 6 months earlier. In June it measured 26mm x 26mm x 38mm. The latest scan measures 31mm x 31mm x 50mm. It is behind the pech flap used to rebuild my throat after the first surgery in July of 03.
I have tried three different chemo drugs in the last year and a half. I have decided to end all treatment while I still feel OK rather than go on something that will make me ill during these last few months. They told me I would likely have between 6 to 8 months. I can't see the sense
of continuing treatment if all it will give me is a couple of more months. I have lost most of my hearing in my right ear. The scan shows fluid built up behind the right ear.
Thanks for understanding my decision,
Love Ya All, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#46452 01-25-2006 12:35 PM | Joined: Jul 2005 Posts: 6 Member | | Member
Joined: Jul 2005 Posts: 6 |
Sylvia
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#46453 01-25-2006 01:13 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Danny,
I'm holding you in my thoughts. You've been such a model of courage and hope in your fight and you are also a model of knowing when to let go, a completely understandable decision.
You were one of the people that was very kind and encouraging to me when I showed up all confused about the conflicting recommendations I ahd gotten about treatment. You were one of the people who advised me to fight it as hard as I can--a decision I have never regretted. From the bottom of my heart, I want to thank you for that again.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#46454 01-25-2006 02:27 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Danny, we love you.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#46455 01-25-2006 02:53 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Daniel:
I knew that you had a reoccurance. I didn't, however, realize the severity. I agree with your decision. Quality of life is of great importance equally with quantity.
See Ya soon...
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#46456 01-25-2006 04:10 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I will never forget when you first came on the message boards, it was very soon after I found this wonderful family. I admired you instantly because you were so open about your fear, something I had yet to face. Reading your posts made me realize how much courage it took to admit that we are afraid during a trial that requires the emotions that cancer demands of us. And then I had the honor of meeting you and your wonderful wife. My girls had heard so much about Danny Boy, I talked and talked about you. When I met you I felt like I had known you forever and you were the hit of our walkathon. My girls ask me at least once a week how you're doing and this news will make them very sad. I'm crying typing this. I'm so sorry it's turned out this way Danny, I wish I could do something to change the outcome. But I so deeply respect the courage you have shown and continue to show. I also agree with your decision, it's one I would make for myself if I am ever in your position. You offer a window into what may become some of our realities in the future, please keep sharing with us.
Love you,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#46457 01-25-2006 04:15 PM | Joined: Nov 2005 Posts: 79 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Nov 2005 Posts: 79 | Danny - I know you have been posting less since I joined the site but I am someone who has probably read almost all the posts that exist on this site. You have no idea how the insights and humour and shake recipe you posted in the last few years have helped my husband in the last few months.
Thank you so much for your generous sharing of knowledge and your model of positive thinking and abiding self-respect.
Much love to you and your family and friends.
Mary
Caregiver for John SCC left tonsil Stage III/IV dx Sept 05, tx started Oct 21/05 -IMRT 35, cisplatin 3 X 100mg/m2;completed Dec08/05.
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#46458 01-25-2006 06:11 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Danny,Please rest assured that,whether you are in this world or another, YOU are forever going to be part of many lives. You represent the best that the human spirit is all about: strenght, courage, resilience, fortitude, and love for your fellow man. You have touched all of us who are struggling with this disease and you have done it with unprecendeted grace and kindness. You have given so many of us the courage to meet the next day. You have our respect and love. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#46459 01-25-2006 06:25 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | I respect your decision Danny. Love to you and your family. Helen
RHTonsil SCC Stage IV tx completed May 03
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#46460 01-26-2006 12:48 AM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | Oh Danny Boy!
I am so sorry to hear this news, and so proud of the decision you have made. You continue to be an inspiration to me. God bless you and your family.
Sincerely,
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
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