#41496 07-02-2007 04:30 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Hi Everyone! Well tomorrow is going to be.... I have no idea. I should read up on it, but our ISP is upgrading this week and I keep losing my connection. I am so happy to finally begin with mom...it's been a long and scary road. I couldn't have gotten through it without all of you. I feel so blessed, and I want you to know that I continually keep all of you in my prayers everyday, even the people who haven't found this forum yet. As always, any advice is always welcome and has always been so helpful. Thank you. Donna
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#41497 07-02-2007 07:18 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Oct 2006 Posts: 160 | Donna, Hi! Was reading your post and not sure if your Mom is having the brachytherapy done tomorrow or something else. I had brachytherapy done last July, and if you need any information maybe I can help. Where is she having it done? I had mine done at Presby. Hospital in Pitts. Pa. It's part of UPMC. Like I said, you may be talking about something else she is going through, wishing her the best in whatever she has to face. Take care. Linda
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#41498 07-02-2007 09:59 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Hi Donna! The only 'advice' I can give you is to be thankful that treatment has finally STARTED---tomorrow is the beginning of the rest of your mom's life and celebrate every 'good' day -or even part of day-that she gets! At least something will now be 'happening' and we all have you in our thoughts. Whatever happens, she has a lovely, caring daughter, Brenda x
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#41499 07-02-2007 04:17 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Hello Donna
Please tell Mom I said hello and Good Luck!
I am sure that YOU will feel a tremendous relief in a day or two now that the treatment has finally begun.
I am also thinking that your Mother will also, especially since she no longer has to go through the surgery she was so frightened of.
God Bless, Petey
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#41500 07-03-2007 06:28 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Linda, Brenda and Petey, Thank you. Linda, she goes for set-ups today. My dad and sister are taking her, I opted to stay home and clean her room...it's hard to do when she's in there, she gets upset. She is to begin her 5 wks of outpatient radiation next week. They said that they may give her a little treatment today--though, they may not since she has a little poison ivy on her face. I would be especially grateful for any info you can share about the brachetherapy. I've read about it, listened to the rad onc, but it's not the same as hearing from someone who has been through it. One of my biggest fears in the amount of weight she is beginning to lose. I can't get her to eat much. I almost forgot, she is having it done at HUP. I better get moving. Thanks for the well wishes, I will share them with her.
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#41501 07-03-2007 10:35 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Mom went for set-up today. I spoke with my sister a little while ago, she said that they will be giving her 31 tx's of radiation, they may also treat her with Erbitux, we will take her to see new MO on Thursday in regards to whether she will be a candidate for Erbitux. I expect that she will be since the MO is squeezing in her appt at 7AM! I haven't researched this form of chemo yet, will do so when I stop post here. I am relieved that they are going to treat her aggressively, her tongue looks so bad and uncomfortable. They said that she would start either Thursday or Monday and it would end aprrox around Aug. 20th. Then she will have two wks off then go in for the brachetherapy. Her treatments will be daily for 15 mins and she will meet with ehr RO every Monday before or after tx.
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#41502 07-03-2007 10:40 PM | Joined: Jul 2006 Posts: 75 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Jul 2006 Posts: 75 | Hi Donna it is Karen, I am wondering about your mom and her ability to eat. Can she? Is she on a liquid diet? Does she have a PEG ? Just wondering I am trying to catch up. I don't know if she is in that bad of condition to need tube feeding, but my dad had one and helped him in so many ways. He wasn't crazy about it at first, but it really became a great thing for him. Also thank you for all of you emails they always put a little smile on my face. I hope you are doing alright. Hang in there.
karen and dad
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#41503 07-04-2007 01:36 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Hey Karen!! She hasn't started yet.
How are you? What's happening? Looked around....didn't see anything about your dad? Everything OK?
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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