#41207 05-15-2007 08:12 AM | Joined: May 2007 Posts: 27 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2007 Posts: 27 | Has anyone ever had an allergic reaction to Ethyol? My husband has had 11 SQ injections. Yesterday after his injection, he became very red, with welts over his chest, back, arms, butt. Even the top of his head was very red. Very itchy, felt achy, headache and some difficulty with breathing. The Dr. said that it is very, very rare to have any reaction to Ethyol. Wayne tends to be one that gets the rare happenings. When he was diagnosed with Glaucoma and put on Travatan, he was one of the very few that got an infection from it.
They withheld the injection today because the next reaction would be very severe. They are going to research it some more. To say the least, he is very worried about having to take it again. And, he did not have anything other than his usual prior to the injection...the same as he has taken today (with no problems).
Pam
Caregiver of husband, age 57, non-smoker, DX: 4/07 w/undifferentiaed SCC, TX IMRT X37 @ 200, Chemo Cisplatin, 5FU X2. TREATMENTS COMPLETED ON 6/20/07!!
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#41208 05-15-2007 11:43 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Adverse reactions are common with Ethyol. See: http://www.drugs.com/pro/ethyol.html for the whole enchilada...
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#41209 05-16-2007 01:32 AM | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | Pam,
I was taken off the Ethol after 7 doses. I broke out from head to toe and felt flu like symptoms. Even after just 7 doses my saliva recovery has been remarkable. I was also told by my docs to take 150mg Zinc for taste buds, and l-glutamine for saliva. I recovered all my taste and about 85% of my saliva. He'll do ok. All my best.
Rob J.
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
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#41210 05-16-2007 02:56 AM | Joined: May 2007 Posts: 27 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2007 Posts: 27 | Rob,
Did your dr. put you on the Zinc and glutamine after your treatments or during?
Pam
Caregiver of husband, age 57, non-smoker, DX: 4/07 w/undifferentiaed SCC, TX IMRT X37 @ 200, Chemo Cisplatin, 5FU X2. TREATMENTS COMPLETED ON 6/20/07!!
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#41211 05-16-2007 05:32 AM | Joined: Jan 2007 Posts: 108 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2007 Posts: 108 | Pam,
I had a very small reaction to the Ethyol. Red spots at the site of the shot started getting bigger as I kept going. It also made me very nausious about 30-45 minutes after the shot. Anti-nausea meds got that under control and I continued to take Ethyol all the way through my radiation treatment.
T3N2aM0 SCC right oral tongue. Partial Glosectomy, Modified Neck disection for 1 Lymph Node. Dec. 2002. 35 IMRT 2003.
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#41212 05-16-2007 08:24 AM | Joined: Sep 2006 Posts: 22 Member | | Member
Joined: Sep 2006 Posts: 22 | Pam,
I had similar reactions. The rash, itching, and flu like symptoms became more and more intolerable with each shot. My doc thought the safest bet was to stop injections since the reactions were becoming so severe. I only received 10 of them.
Just so you know, I only lost a small portion of saliva production post treatment. Of course your husband's mileage may vary.
I hope the best for you and your husband and if I can be of any assistance do not hesitate to let me know. Best of luck,
Gary
SCC left Buccal Mucosa (cheek). Surgery with Modified Radical Neck (23 lymph nodes - all clear). IMRT x 30. Finished tx 11-21-06
"Don't give up, don't ever give up!"
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