#37302 05-02-2004 10:30 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Saliva stimulation: I have recently heard on Atlanta TV about a Doctor at Emory University hospital who is claiming 70% success rate with acupuncture. Anyone know anything about it? Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#37303 05-02-2004 02:28 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I read in the SPONHC newletter that there have been successes and I believe I saw a paper about it on this site somewhere. I heard that some people have had a positive response after 10 treatments. I asked my accupuncturist who has almost 20 years of experience in Taiwan and he didn't seem to think it would help so I did not try it.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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#37304 05-02-2004 06:10 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | This topic has been up before. No one here, to the best of my knowledge, has had any success with acupuncture in regards to salivary function. Most acupuncturists have also advised their clients that it had no benefit just as Ed stated.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#37305 05-03-2004 12:31 AM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2002 Posts: 541 | I remember posting my response about acupuncture stimulating saliva. In Hong Kong, acupuncture is very popular and I did go for it for about 6 months after radiation. My acupuncturist told me that this treatment has little effect, if any, on saliva function. I went there to improve my nervous system of my hands only. Marica, you may give it a try if it is not expensive. Don't put too much hope on it.
Karen.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#37306 05-03-2004 02:23 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Thanks everyone...we will probably give it a try and will post results . At least now we won`t have over inflated expectations. Cheers Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#37307 05-21-2004 12:13 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | We had our first visit to the acupuncturist today. He is a radiation oncology professor at Emory University Hospital in Atlanta. Two needles in each ear , one in each index finger, one on jaw and one under jaw. They were left in for an hour. Pete actually had saliva threads in his mouth after treatment and it stayed moist for a couple of hours. We have decided to stay with it for a few weeks , he will be getting treatments twice a week for about a month then easing off as we see how he progresses. I will let you know how we do, fingers crossed!! Marica
Husband stage IV SCC base of tongue diagnosed April 2003 finished treatment July 2003
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#37308 05-21-2004 04:23 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Marica,
I am thrilled at the success already. Just remember the movie, Peter Pan, with Robin Williams and the kids. They kept trying to convince Peter Pan he could fly. Eventually they told him the secret...YOU GOT TO BELIEVE! Please keep us posted.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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#37309 05-23-2004 10:41 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | We believe Ed...WE BELIEVE.... will keep you posted .Today Sunday ...still has some saliva! WwoooHooo. Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#37310 06-22-2004 02:54 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Pete has completed his course of accupuncture treatments. He definately has more saliva but he is not yet willing to say it is because of treatment. The Doc has suggested he not have any for a few weeks to see if he can tell a difference. I have heard so many stories of spontaneous reoccurence of saliva that I dont know what to think myself! Iam just grateful he has it ..I dont care where it came from! Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#37311 06-23-2004 03:43 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I am glad Pete has some saliva! Not only do I not care, but I don't want to know where it came from , as long as it works! After learning saliva is 90% liquid or water, I know that my sips of water every 5 minutes are giving me 90% of what I need, I marvel, since I was only an 88%'er in school. I had the record for 88's on test scores all my life, at least 90% of the time. Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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