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Joined: Mar 2003
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Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Mar 2003
Posts: 1,384
Likes: 1
Hi to both Reen and JudyB,

First Reen, I hope to hear an update from you.
Take care...

JudyB,
I have some thoughts on the fear thing I hope helps. I can't say that I have beaten the fear entirely for myself but I at least reconize the problem I have with "awfulizing" (my own word) that is letting my mind consider the worst possible outcome and then dwelling on it to the point of lost sleep and worse.

First, fear and worry gains you nothing.

Second, You can always imagine something to be worse than it really is. (this is where I excell.)

It often takes me awhile to push my mind back to a place of relative calm when a wave of awfulizing hits. I do it with prayer and by meditation. I don't want to get deep into faith right now but it has been a great comfort for me, the meditation is an effort to train my thinking to be slower, to see the good and live in the moment (don't think ahead so far), to realize all things have a purpose even this cancer. The process you are living (cancer) is part of your life and the total event will make you and your husband stronger. Ultimately you will probably find many aspects of this event to be very good. Life changing but good. (I hope this comes across as helpfull and not wacko) It is hard for me to type what I have been through (with my wife and 3 kids)over the last 2 years.

May I also say I'll pray for you and your husband. I personally had several moments of severe worry that "it" was back in every case I was wrong. Even Dr's can be wrong and if you get bad news get other opinions. Search out different Dr's even if it means traveling a ways away. If your Doc is any good he/she will help you. There is always hope. I know of a book you should get, (actually a few) but since I don't know if posting the titles is ok with the rules I won't put it here. If someone says it's OK I'll post it later.

For now take care and I want to hear about the outcome of your April 7th check.


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
Joined: Apr 2002
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I just recently lost my Mom in January. They told her she has 2 weeks to 2 months & it really ended up being 2 days. PLEASE spend as much time s possible with your sister - have NO REGRETS!!! Talk about everything from her wishes to your childhood. Cherish every moment you have. I cannot express that enough. Also, know that she loves you. I am crying just reading your post because it is all so fresh, I had the experience where I wish I could have said more even though I was with my Mom all the time. She was only 62 years old. Much to young in my opinion. Please keep us posted & don't be afraid to show your emotions in front of your sister, it's amazing how a good cry together can be SO helpful. You & your sister are in my thoughts and prayers.


I have learned that life is too short. Spend as much time as you can with you family & loved ones. You never know what tomorrow will bring.
Joined: Oct 2003
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I hope your sister will be fine. I lost my mom last December just before Christmas. It had spread to her neck area. She had cancer of the tongue and had about 1/2 removed and a neck dissection w/radation. On death's door they wanted to do Chemo, but she passed away because it spread to her neck and she couldn' breathe any longer and was then on a reciperator for 2 days.
Hang in there and enjoy your moments w/her. We are all praying for you and your sister.

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