#3009 07-13-2004 07:58 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Hi All
Well, off to the "Kong" tonight for follow up PET/CT tomorrow morning. This one will be 14 months since the end of last treatment, so I'm kind of taking this as a mental milestone, figuring if this one is good chances are things will work out ok.
Have the normal pre-scan jitters, except this time I'm not doing the imagining 7 different re-currance sites like I did the last time. I think by now all the sites I thought were re-currances were confirmed ok. That's the part that scares me the most, the fact that I think things will be ok. Murphy's law I guess. Figure in this case I think things will be ok and I'll get surprised and they won't be. Also not too thrilled with the process itself although I sleep through most of it at this point. Just going to the hosptal makes me feel weak and frail, a mental thing.
One good side benefit, hospital called yesterday with the dietary restrictions, only meat or seafood tonight. So, a big plate of oysters Rockefeller is going down the hatch tonight, if things are going to heck, they're going to heck in style.
So keeping the fingers crossed, want to get to Vegas all in one piece, with at least all the parts I have presently intact.
Thanks for listening.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#3010 07-13-2004 09:16 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Bob
Will be thinking of you, you are allowed the jitters this time, but from here on in no jitters,
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#3011 07-13-2004 11:27 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Bob,
Nothing but good thoughts and vibes being sent your way! Take the "Kong" by storm and we'll be waiting to hear your good results when you get back! Have a safe trip and I hope you enjoyed your oysters!
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#3012 07-14-2004 01:32 AM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Bob, so far we are the only 2 members on board having the cancer treated in Hong Kong, a place not many people in the US are familiar with. After what I have gone through these years, I am proud of the medical technology and the doctors' professional ethics here. I am sure you feel the same and am confident that nothing worrying will show up in your follow up scans. Waiting for your good news,
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#3013 07-14-2004 05:45 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | I had a chance to visit Hong Kong in 1991 when I was a sailor in the U. S. Navy. It's a lovely place. Bob, I know all about those jitters as I have a little bit of a case of them myself -- I have a follow up this Friday. Best of luck and keep us posted on the results.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#3014 07-14-2004 06:16 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Bob,
Praying for great scan results!!
Take care,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#3015 07-14-2004 07:16 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Bob, I have fingers, toes, AND eyes crossed for you. Take care.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#3016 07-14-2004 07:22 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Bob,
I am hoping and praying for excellent results from your scan!
Brett, I am also praying for excellent results for you Friday.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#3017 07-14-2004 09:26 AM | Joined: Jun 2004 Posts: 106 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 106 |
scc right tonsil T1N1M0, right tonsillectomy + modified neck dissection 3/04, radiation IMRT both sides X33 ended 6/04.
Also had renal cell carcinoma, left kidney removed 11/04
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#3018 07-14-2004 11:12 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Wat to go Bob, Hang Tough!
See you in Vegas!!!
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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