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#27455 06-08-2005 11:40 PM
Joined: Mar 2005
Posts: 25
Dino Offline OP
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Mar 2005
Posts: 25
I had some weird things start in my mouth area about three months ago. I had an ulcer on the left side of my tongue grow. It was not like a canker sore but more like just an open sore. After a couple weeks I went to my GP that then sent me to an oral surgeon. He did a biopsy that returned negative. About a month after that I noticed a growth on the left side of my tongue about two inches behinde the initial open sore. So I went back to my GP that then sent me to an ENT. The ENT did a biopsy and that came back negative. About a week after I had that biopsy I started to feel a lump sensation or like something was there in the back of my throat along with a mild sore throat that seems to come and go. I went back to my GP who sent me for a CT scan which came back normal. After the CT scan I went back to my ENT who looked down my throat with a scope. He said he did not see anything wrong. So I went to another ENT for a second opinion and he said he did see some redness just above my vocal cords and some debris on my lingual tonsils. I insisted that a biopsy be done on my lingual tonsils and he said ok after explaining that he did not see anything that really conerned him. Should I go through with this biopsy or are the tests I have had to date enough evidence to conclude my results. I has been two months of this feeling of something in my throat and mild soreness off and on.


Dino
#27456 06-09-2005 01:12 AM
Joined: Nov 2002
Posts: 274
Platinum Member (200+ posts)
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Platinum Member (200+ posts)

Joined: Nov 2002
Posts: 274
Dino,

You need to let this go. Many of us have been incorrectly diagnosed, but not after so many attempts to rule OC out.

Glenn

#27457 06-09-2005 02:29 AM
Joined: Oct 2002
Posts: 546
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Oct 2002
Posts: 546
Dino,

You could just have the tonsils taken out - NOT because I think you have cancer, because I don't - but because they could be causing some of your problems. You have been counseled repeatedly to let this go and you obviously aren't going to do that, so just have the tonsillectomy and be done with it. Make sure to tell the doctor that while he's in there, you want him to look at everything, not just the tonsils, scope everything possible, biopsy anything even slightly suspicious, then, if nothing is found, let it go and get on with your life!

Rosie


Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
#27458 06-09-2005 03:51 AM
Joined: Apr 2005
Posts: 2,219
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,219
This is the 4 th time since March that you have been asking us the same questions. You've been to a walk-in physician, your regular doctor, 2 ENT docs and an oral surgeon, if I read everything you've written correctly. ayou've had 2 biopsies, both negative. You certainly have gotten enough professional opinions to put your mind at ease, but apparently it's not helping.

Although mistakes in diagnosis can certainly occur, they ALL can't be wrong.

Each time you post, it's like you've never been here before. It's probably time for you to put this to rest.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"

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