#26854 10-17-2004 01:09 AM | Joined: Aug 2004 Posts: 18 Member | OP  Member
Joined: Aug 2004 Posts: 18 | Hi there,
I have posted a few times since August about my husband having some | | |
#26855 10-17-2004 01:20 AM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hi Debbie,
I'm so happy to hear the great news and that it was a false alarm. The anxiety of scares and the waiting game are brutal on the mind and soul. I, too, am coming up on my one year anniversary since end of treatment (Nov. 6th). Here's hoping for continued good reports for your husband and for me. Hope your 16 year old had a good birthday - isn't it great to be able to celebrate again?
Hugs, Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#26856 10-17-2004 03:25 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Wonderful news on a truly beautiful day, Debbie! While I am looking forward to the anniversary dates to come, I can see how anxieties can foreshadow the tests. Thank Goodness for your happy news  Happy birthday to your 'middle child!' My own middle child celebrates her 25th today Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#26857 10-17-2004 06:18 AM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | I too went through a scare similar to yours this last week & am happy to say that it my ENT's opinion that it is also scar tissue. Good health to you & your family!
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#26858 10-17-2004 03:32 PM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Debbie, congrats on the good news. Isn't "all clear" and "just scar tissue" some of the nicest words you've heard in a while? I'm sure you both know how to celebrate your 1 year anniversary from end of treatment. I am coming up on my one year anniversary of being diagnosed, not quite the same. Have a good time celebrating both events, birthday and anniversary.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#26859 10-18-2004 12:50 AM | Joined: Aug 2003 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2003 Posts: 71 | Debbie- Yeah!!! I'm so glad it was just scar tissue. I know exactly what you are/where feeling playing the "waiting game"...I truly think that is the worst part of this disease, at least for the caregiver. On October 21st it will be 1 year since Don ended treatment. I look back and am just amazed at how far we've both come...but the crazy thing is that I'm getting very anxious as the date gets closer. He sees the radiation oncologist on the 20th and I'm certain he'll say everything is ok..but I just keep feeling like everything is going "too good". I know it is just my "nerves"...my head keeps saying "yeah, you thought everything was good last year and then it was cancer...God I hate this disease! Anyhow, here's hoping by the end of this week I'll be posting an update like yours. You hang in there and enjoy the 'cloud 9' effect getting good news gives us  Lorie
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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#26860 10-18-2004 07:06 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Debbie,
I am so sorry you had to wait on the edge of your seat for 2 months. I know it is easier said than done but try very hard to never let the "what-ifs" of this horrible disease dictate even a second of you life. The moments wasted worrying are times we will never get back. Enjoy every second. It aint cancer till they can prove it!
Lorie,
WOOHOO, girl! You give Don a great big hug from Susan and I and ask him to give you one from us, too!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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