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Joined: Sep 2013
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Ambra Offline OP
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I much appreciate all the replies here, and trying very hard to think it is just a zit, it had to be that... I will call my RO's nurse tomorrow and go from there,to find a doctor to look at it.
Thank you all so much!


36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound



Joined: Oct 2013
Posts: 559
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Hi Ambra:

I haven't said hi in awhile ... so "hi".

I think it's good you are going to get it checked out. Hopefully it will give you one less thing to worry about.

Has anybody told you that you worry a lot; it's very evident in your writing. I know Bart has said to stop worrying so much. But, it just seems to stick with you. It's like you never get any peace because there is always something new and your chosen reaction to it is to worry that it is always bad instead of relaxing and give it a chance to be benign or good.

Of course if the acne/zit doesn't go away in 2 weeks then of course you need to ask your doctor. But, did you give it two weeks. I apologize for not remembering when it started, but I don't think it was as long ago as two weeks.

Please don't think I'm trying to be hard on you, that's the last thing I want to do. But you just worry so much, and that isn't good.

We had our dance club Christmas party last night, had a great time dancing, but all the food tasted BAD, even the dessert.

Take care Ambra .. stop worrying so much

Tony (9 zaps to go)


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

Joined: Sep 2013
Posts: 94
Ambra Offline OP
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Posts: 94
Hi Tony,

"Hi" to you as well. And am glad to hear you had fun dancing. Too bad about the dessert, but you will be able to taste dessert again very soon.

Yes, I am very aware that I worry too much in general. Such is my personality, I have always been like that. I know that is not good, and I have been trying to change that for a while, but some changes are difficult to accomplish.

Now, with this terrible disease, unfortunately, finding any lump and bump, especially in the general area where cancer was, is always going to be a source of great distress and worry for me. I am sure pretty sure anyone here can relate to that. I can and will continue to try to worry less, but sometimes it is impossible.

I do not seek things to worry about on purpose, they just happen. Trust me, I would much rather focus on something nice, it is just that there hasn't been anything very nice in my life for a very long time, years actually. The last four or so years have been a string of bad events, culminating with this diagnosis. I am possibly nearing the limit of just how much I can take. So I am worrying even more.

Anyway, I do not think you are trying to be hard on me, no worries. I actually appreciate your concern. It is just how I am, and stopping to worry, especially in this situation, is simply not possible right now.

Last edited by Ambra; 12-15-2013 10:26 PM.

36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound



Joined: Sep 2012
Posts: 381
"OCF Canuck"
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Ambra, you won't feel better until it's checked in any event, so get it checked. I had the same issue with a small bump on my tongue, which sent in me into a panic, and off I went to the doc. Turns out I had just burnt my tongue on some hot soup. I felt like a twit, but my doctor told me to never feel stupid about following up.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
Joined: Jun 2013
Posts: 262
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[quote=Ambra]

Now, with this terrible disease, unfortunately, finding any lump and bump, especially in the general area where cancer was, is always going to be a source of great distress and worry for me. I am sure pretty sure anyone here can relate to that. I can and will continue to try to worry less, but sometimes it is impossible. [/quote]

I can definitely relate Ambra, since I too am in the process of having a "new issue" checked out. Anxiety has stolen far more hours from humanity than cancer ever will. Get mad about that and refuse to give in to worries that only rob today of calm and sweetness! Take comfort in the fact that you are doing everything you can to take care of yourself.

[quote=Ambra]...there hasn't been anything very nice in my life for a very long time, years actually. The last four or so years have been a string of bad events, culminating with this diagnosis. [/quote]

Oh Ambra, I am sorry that things have been so rough for so long. The least cancer could do for you is to set you free to pursue happiness. What would that be like?


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
Joined: Aug 2011
Posts: 269
ngk Offline
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Posts: 269
A big AMEN to what mamacita posted! xo


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
Joined: Jul 2011
Posts: 945
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You know, the only thing that bothers me more than people telling me to 'not worry' is suggesting that I 'just relax'. Like that's going to happen :-)

What I have found, however, is being very active about doing something pleasant (such as a good book) or soothing (meditative breathing) does actually help. I think that is also why Christine's advice to keep busy is so helpful.

Thanking about you,
Maria





CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Sep 2013
Posts: 94
Ambra Offline OP
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Posts: 94
Thank you all for all the kind words and support, much appreciated.

I have just come back from the dermatologist and thankfully it is indeed just a nasty under skin zit. Breathing huge sigh of relief.

I also wanted to say that I am emotionally not doing well at all, and am on (or maybe already over) the edge of real depression. I am looking for a therapist and hope that I can find one soon. I might not be much around here for a while depending on my condition and how I manage to deal with it.

Thanks again for everything!


Last edited by Ambra; 12-19-2013 01:01 PM.

36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound



Joined: Oct 2011
Posts: 805
KP5 Offline
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Posts: 805
What you are feeling is completely normal. You are making the right choice to seek help. MANY of us have, whether patient or caregiver.
Good luck and good news from the doc.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Joined: Nov 2006
Posts: 2,671
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Posts: 2,671
Ambra - that is good news from the dermatologist. Depression can get better. You just need to find somebody qualified treat you and make the best recommendations, especially where meds are concerned. Most of us do get depressed. And you cannot expect a quick fix. . . . coming out of depression is a very gradual thing. My son was with a therapist and also on meds for depression. Everyone is individual as to reactions so it's best to keep in touch with your doctor about how you are feeling. Maybe the dermatologist can recommend someone? I used to ask my son how he was feeling on a scale of 1 - 10. If he said a 3, then I would ask if he could work on getting to a 5 and later if he only made it to a 4, that was progress and something to feel good about. So do seek help. You will be glad you did. In the meantime, take some deep breaths, keep moving, keep busy. And come back and let us know how you are doing.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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