| | Joined: Jun 2013 Posts: 23 Member | OP  Member
Joined: Jun 2013 Posts: 23 | Thank you both. My ENT Doctor didnt have a good enough feel to say for sure at that momemt. My throat & neck are all feeling worse, more swollen daily.
I have a terrible gut feeling.
Thank you all for the support so far.
I have not done my signature page yet. I was hoping to have mre to say after the biopsy.
Robin | | | | | Joined: Jan 2013 Posts: 10 Member | | Member
Joined: Jan 2013 Posts: 10 | Hang in there, and remain optimistic! I hope everything goes well!!
Andy
Oral Tongue Cancer, SSC, T1 1.5cm diameter,.3cm deep,HPV neg
DX: Dec 21, 2012
Surgery: partial glossectomy +-15%, Jan 4, 2013
Oral Lichen Planus since 2008'sh
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | The waiting is the WORSE!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2013 Posts: 8 Member | | Member
Joined: Jun 2013 Posts: 8 | Hi Robin,
I had my biopsy on June 11th and was given the diagnosis at 4:40 on the 14th that it was cancer but we had caught it in Stage 1. It was the longest week on my life. I am now waiting for surgery on July 11th.
I think the best advise I can give is too let yourself absorb the information before you start making decisions. I got a 2nd opinion in Mayo Clinic after taking the weekend to think and calm down.
Wishing the best for you!
t1 n0 m0 Stage 1 invasive squamous cell carcinoma floor of the mouth. Wide local excision scheduled for July 11th.
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Try not to get ahead of yourself. Having said that, I know how hard it is not to worry. Sending positive thoughts your way.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Jun 2013 Posts: 23 Member | | OP Member
Joined: Jun 2013 Posts: 23 | Thank you all. My appointment with my ENT is now on July 3rd at 3:30. Im relieved to be going a week earlier although that still seems like so far away. Thats ok. I can handle one week.
Robin | | | | | Joined: Jun 2013 Posts: 23 Member | | OP Member
Joined: Jun 2013 Posts: 23 | I'm having what feels like muscle spasms at the back of my tongue. Is this common from a biopsy a couple days ago? Ill call my doctor if not. It's pretty painful. | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | I never had it. Anything is possible from anesthesia, medications, and does sound unusual. Call your doctor for any concerns.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jun 2013 Posts: 23 Member | | OP Member
Joined: Jun 2013 Posts: 23 | My ENT called. No cancer. Im excited about that news but unsure cuz something is going on. Ive been having these problems for a year now. I see the doctor on Wednesday. Hopefully he will have answers then.
Thank you, Robin | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | That's great news! There are so many oral or medical conditions that can cause your ailments. I hope you find answers, but at least it's not cancer. Good luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
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