| Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2013 Posts: 23 Member | OP Member Joined: Jun 2013 Posts: 23 | My throat is so sore and swollen. Is this common? | | | | Joined: May 2013 Posts: 134 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2013 Posts: 134 | I know waiting stinks...
I'm fairly new here so maybe this has already been covered at length. I had a very large node on the right side off my neck. It was hard and not movable but at no time did it ever "hurt". My primary was decent size and I did notice some minor difficulty swallowing immediately before treatment but at no time did my throat ever hurt either
You are on the right track with the docs. Let them do their job and tell you what you're dealing with. But be aware there are several other possibilities instead of the scary stuff you read. Take a deep breathe..,
Dx March 2011 via FNA (49 yrs old) SCC BoT HPV+ exact strain unknown Stage IVa T3N2cM0 Cisplatin x 3, IMRT x 40 (7267 cGy) One node removed post-treatment (rad dmg) Clean PET 10/28/11 Swallow therapy | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Robin,
Try and develop a Signature Line so that all readers can relate to your current Posts.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2013 Posts: 23 Member | OP Member Joined: Jun 2013 Posts: 23 | Im unsure what my Signature Line would be | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Robinmarie - just go to the top of this page and click on "My Stuff", then on "Edit my Profile" and scroll all the way down to the signature box and put in whatever you like about your treatment so far.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jun 2013 Posts: 23 Member | OP Member Joined: Jun 2013 Posts: 23 | Oh ok. Thank you. Ill add that today. | | | | Joined: Jun 2013 Posts: 23 Member | OP Member Joined: Jun 2013 Posts: 23 | Well, I had my biopsy yesterday. Im telling you thru my husbands words what the doctor told us since i do not remember anything.
The Doctor said he did see the lump & was able to do the biopsy. He could not tell anything from the examination during the operation. There are many things this mass could be. There was nothing grossly visible.
I will see the doctor next week for the biopsy results. Im not sure if him not seeing anything grossly visible is good or "no meaning". Another week of waitng & wondering. Im going to have a nervous breakdown soon.
I am releived that it was visible.
Does anyone have any experince with this outcome? I want to hear the good, bad & ugly.
Thans, Robin
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Hi Robin,
For one to even begin to speculate on your situation would be irresponsible and cause you undue stress. It's not cancer until they say it's cancer. That being said, I prepared myself to hear the words I was dreading.
I had an examination on Nov. 21st 2012. At that time a scope was done and a FNAB. I asked the ENT to tell me straight up what he "thought" it was and he said: "This is cancer. I don't know what type but I've seen enough of this to know what it is". Regardless of expecting to hear that, my heart still skipped a beat when he said it.
I did what everyone here has done....consulted Dr. Google and was convinced I had lymphoma. I was actually somewhat relieved when I heard it was SCC on Nov. 30th 2012. I had not heard of it before. Then I looked it up! ~sheesh~!
So it was an ugly outcome and quite a journey thus far with a lot more to go before I settle into my new normal. I'm two months post treatment and while I'm getting better, the progress is excruciatingly slow.
Positive thoughts and prayers,
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | It's a tense time. I totally know the feeling. In my head I was thinking the same thing as fishmama - I knew I had cancer. The ENT who I was having the biopsy done by told me the day I saw him I don't like this area, and proceeded to do the biopsy. I had told him over the few weeks wait it was feeling better. He said that's good but I am still doing it. I felt chills when he said it and expected the worst.
Its a good thing he did the biopsy. Hopefully you will get good news next week. hugs to you. I don't envy you the wait. But you will get through it.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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