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kaykay #164661 05-07-2013 10:45 PM
Joined: Dec 2003
Posts: 2,606
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Patient Advocate (old timer, 2000 posts)
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Joined: Dec 2003
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I am so sorry to hear about your father. I can only hope your pain becomes more bearable with time. Your dad knows you were there with him for the entire journey. Sometimes that is enough...or at least all we can do.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
kaykay #164666 05-07-2013 11:31 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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Posts: 10,507
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Im very sorry for your loss. It sounds like your father did very well handling the treatments. Losing a parent is never easy. I do understand what you are going thru, I lost both of my parents many years ago. Try to think about happier times and let those memories help you to remember your father before he was sick. Take time to grieve and try to remember to be good to yourself.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
kaykay #164667 05-08-2013 01:32 AM
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
Oh Kaykay, life just is not fair. I really do feel your pain.
I don't know that you will ever get answers to all your questions.
I think that you just have to treasure the memories. Think of all the good times you had together and of all the love you shared. Know that he fought hard. You all did your very best to get him a good quality of life and to keep him with you. it just wasn't to be.
I pray you find the strength to get through these very difficult weeks and months.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
kaykay #164668 05-08-2013 02:32 AM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Oh Kaykay - I'm so sorry to hear of your Dad's passing. There is never enough time when we lose someone close to us. I'm sure your Dad felt the love and the tender moments you had with him as he fought so hard to make it through this tremendous challenge. Just know that his love is still surrounding you and helping you now, as you make it through these sad days and moments.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



kaykay #164675 05-08-2013 07:51 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
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I am so sorry for your loss. I recently lost my father so I have an inkling of what you are going through. Much love hand hugs to you during this difficult time. It is never easy to lose a loved one.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
kaykay #165636 05-28-2013 06:21 AM
Joined: Jan 2013
Posts: 15
kaykay Offline OP
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the last 4 weeks have been very buisy,we've had alot of firsts,mothers day, first trip to a family holiday shack without dad,1st granddaughters 21st which dad had set as a date he wanted to be able to eat something and have a beer and generally feel well enough to enjoy the day,first stay at mums with out dad being there,i know there are plenty more to come and that each will be as hard as the other,this is the first wkend that we have nothing on and im not looking forward to it,keeping buisy seems to have helped,its the quiet times at night that my mind turns to dad,dont want a whole wkend of quiet !lm still struggling to come to terms with the reality of it all,l do know one thing for sure, so far it hasnt got easier its got harder, the crying just starts up anywhere any time and i cant stop it...i can hear him and see him like it was only yesterday ,l just cant get my head around the fact that i wont see him again, i honestly dont know how to go on with out him in my life...it trueley sux !!!!

kaykay #165646 05-28-2013 08:02 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
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Sorry for your loss, it does eventually get easier but you do have to allow yourself to grieve. Try to remember the good times. I lost my dad in March, it was heart breaking but he was suffering and unhappy. I love him, and miss him, but try to remember the good times with him. hugs, love and peace to you.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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