| | Joined: Nov 2012 Posts: 7 Member | OP  Member
Joined: Nov 2012 Posts: 7 | Hello, my father has just had a 3rd diagnosis only 3 months following removal of a tumor at the base of his tougue and partial glosectomy. Orginally, he went through surgery and RT for a large tumor in his sinus cavity. Now he has had positive biopsies in lymph nodes on both sides of his next and another tumor emerging from his jaw. As you all know, he has had exhaustive amounts of difficult recovery from cancer removal, bone and skin grafts,use of PEG difficulty speaking,etc. He is 85 and says hs is "done." My question - are there any resources for people who decide not to pursue further treatment and what can be expected? He is 85. Thank you, Tracey
Tracey S
Daughter/Caregiver of Father
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | It may be early but check with your local hospice organization. Minimally, they will offer a consult to determine what and when your needs will be with respect to making your Dad and family as comfortable as possible. don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Tracey,
I am so sorry you and your Dad are at this yet again. I will let others speak regarding where to go from here, but eventually Hospice would be the best I'm sure. Is he in a lot of pain?
Please know we are here for you to vent to, and I hope you have friends around you to help.
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im very sorry to hear about your fathers recurrence! Its never easy when you get that kind of news. Give him a couple days to let it sink in. Maybe he will agree to at least give it a try before he gives in to this. Its awfully difficult to opt for treatment when it keeps coming back like this. As far as where to get other assistance I can only echo the other members with using hospice.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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