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#159038 12-16-2012 11:27 AM
Joined: Oct 2012
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Hi folks -

I am starting week 4 of treatment and have contracted a relatively bad thrush infection. It is finally starting to go away after 4 days of topical antibiotic, but it is still terribly hard to eat. Any food recommendations? Getting tried of the Ensure Complete diet!

Thanks All,

Ray


Ray

SCC Right Pharangeal wall Stage IV HPV+
T1-2N2bMO
Dx 10/12/2012
Father for the second time to 2nd beautiful boy 11/2/12
Port Implanted 11/20/12 - no feeding tube
Tx - 11/26/12 35 IMRT Rads 5X/week Weekly Cisplatin
Last treatment 1/15/13
"Grind it out, I will be cured as I have too much to live for"
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Minimal sugar It feeds the thrush. I used manuka honey as well had no thrush (well at the end of treatment I'd topped the honey for about a week, and thought I was getting thrush my RO told me to rinse with my magic mouthwash there was nystatin in it. I had been, it wasn't working so I went back to the honey. And it solved the problem). Also do what you can to bump up his immune system. Hugs.

Last edited by Cheryld; 12-16-2012 03:11 PM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Oral thrush, candidiasis, is fungal infection, which is common with a compromised immune system, such as with cancer, and a secondary condition due to Mucocitis from the radiation and chemo. As Cheyrl said, it feeds on sugar, and is basically an uncontrolled yeast infection. Avoiding sugar, breads, alcohol, excess fruits, etc. and anything that irritates the mouth such acidic foods, spices, sharp textured foods, hot foods. Thrush can go to the esophagus, stomach, and if untreated, it can elsewhere throughout the body via the blood system, and become invasive or dessiminated candidiasis, a potentially deadly condition. The mouth is also vulnerable to spread of infection due to any ulcers present into the blood. The treatment is with an antifungal, not antibiotic, such as the Nystatin rinse, but Fluconozole (Diflucan), clotromozole are more effective, and both are often used. Impeccable oral care is important by brushing after each meal, before bed with a soft brush rinsing often with baking soda rinse w/salt if it doesn't burn, flossing, and changing your tooth brushes often to avoid reinfection.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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I know Kevin was on a daily dose of Diflucan(liquid)during IMRT. This seemed to negate that problem.
If scrambled eggs will go down, the protein would be good.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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Yogart is good for thrush as the proboitics rebalance the good germs in the mouth. My doctor gave me a huge supply of Clotrimazole medicated mints to control the thrush. He said to take up to 5 a day. If I think the thrush is comming back i will grab a mint or two a day just in case.


Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
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Posts: 8,311
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Thank Heaven Thrush didn't discover my mouth until post Tx. Since then it has liked my mouth so much that it has come and gone like a summer vacationer. About a year ago my dentist told me to take a spoonful of Activa a day and so far it's kept my unwanted vacationer away.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Ray, here is a list of easy to eat foods. This may help you to be able to eat while your mouth is very sensitive.

List of Easy to Eat Foods


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Some doctors say using probiotics in a compromised immune system, like cancer, may not be good, even harmful, even though the good kind, believing it will be just adding more bacteria to fuel infection. If probiotics are taken, it should be the refrigerated type being they are live cells, and can be destroyed easily, if not handled, stored properly. I don't think yogurt is what they speak about, but more prescription or mega strength. I haven't met one doctor yet that said so, and every time I was in the hospital, yogurt was always on menu, and was even given probiotics for c-diff infection.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Posts: 17
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Posts: 17
Thanks Christine! This is just what I was looking for. - although I was well warned- by all the kind folks here and my very candid RO - it continues to be beyond my expectations. I try not to pressure my wife and caretaker too much as she is focused on caring for our 2 year old and 2 month old as well as the 39 year old. Without her I am not sure how I'd be faring. Hats off to you for doing it solo....

Ray


Ray

SCC Right Pharangeal wall Stage IV HPV+
T1-2N2bMO
Dx 10/12/2012
Father for the second time to 2nd beautiful boy 11/2/12
Port Implanted 11/20/12 - no feeding tube
Tx - 11/26/12 35 IMRT Rads 5X/week Weekly Cisplatin
Last treatment 1/15/13
"Grind it out, I will be cured as I have too much to live for"

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