| | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | nothin to report just yet, had to be here @ 530am makes for a very long day, took him back to surgery bout 635, i got to see him for not even 5 mins wth? said should be 730am but than said 7am and so far no buzz from pager stating it has started yet. Doc's aid first team 6 hrs reconstructive team 4 but nurse in room said 12 hours, long day, night ahead. Ron was in really great spirits, let's hope and pray everything goes well.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Seems like things always start at 5:30am. That's the way my son's surgery started and it was a lo-o-o-o-o- n day. Hope everything goes well for Ron. Glad to hear he was in good spirits, too. Do you have someone with you, Suez? It's such a long wait - make sure and take care of you and if it's been a long time since you've eaten, you should probably have something to keep your strength up for when the surgery and the waiting are over and you see Ron. Prayers and good vibes going your way right now. Hang in there.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Surgery started 914am wtf? jeez and i will need to eat yes, it will be a long day for damn sure again unless it goes only 10 hours instead of 12
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yikes - there's sometimes a hold up from an emergency or something - depends on how much OR space they have! Grab a bite - read a book - and hunker down! Nap too if you can. I was told to be at the OR at 7am for a 9am surgery... I missed seeing my dr. Only got to see t resident... Apparently the dr. Does round at 6:30 apparently he's not much fo sleep!!  good luck said a prayer for Ron this morning.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | update from pager surgery continues going well
and thank you Cheryl I'm good a bit tired tried to eat a rye bagle could barely get a half of it down waiting on lunch for a wonderful bowl of come kind of soup they have in one of the many eating places they have here. found some very nice people that are sitting with me and we are chatting bout family and life all is good keeping each other company, her husband has 2nd bout of colon cancer so we are in the same boat with the damn "C" so all is well so far
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Apr 2011 Posts: 267 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2011 Posts: 267 | What a long day! So glad you have some company. Best wishes to you and Ron.
Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
| | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Hi Sue! Keep hanging in there. I read your post that it's going well. Wonderful! I'm glad you have company, someone to talk with. I'll keep checking back. Sending lots of positive thoughts to you and Ron!
Love,
Sandy
xoxox
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Glad things are going ok with Ron's surgery. And glad that you have someone with you and that you can share experiences. Anything shared is always easier to manage. You are one tough lady, Suez - You and Ron will both get through this! Keep checking back and let us know how things progress. Hugs and prayers going your way, now!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2011 Posts: 571 | Sue...make sure to eat something. I know nerves make the stomach do flips, but be sure you are getting some nourishment. Soup sounds good....:)
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
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