| | Joined: Apr 2009 Posts: 75 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Apr 2009 Posts: 75 | Hi:
What is a safe mouthwash to use? I have heard alcohol in mouthwash is not good for anyone. I noticed that there a a few no alcohol washes out there
Boston
Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi Boston:
Biotene Dry Mouth Mouthwash is good for me. There are others, but I've found this doesn't burn at all. Yes, avoid the ones with alcohol because they will set you on fire. Hope this works for you.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | Biotene works for me, as well. I also use the Biotene toothpaste.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Biotene is the OCF favorite even though they won't give Brian or OCF any money for all the recommendations we give them.
You can do a search on biotene in the search box to the right to see some prior posts
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | In praise of Biotene, several years ago, they did make available to a certain number of survivors on this site, a great selection of Biotene products in exchange for comments on how the products helped them. I think it amounted to about $100 worth of their products all supplied free to anyone needing them. My son was one of the fortunate ones to receive this gift and when the good sized box came to him in the mail, it was one of the very bright spots in his recovery. In view of the mounting hospital/doctor/prescription fees, that cancer brings with it, Biotene's gift and Brian's efforts in making this available to us were ever so much appreciated. Yay! for Biotene. Just my two cents.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2010 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Dec 2010 Posts: 62 | Love Biotene mouthwash and the mouthgel. Lovely, smooth and cool!!!
Catherine, SCC floor of mouth DX 2010,unclear margins, PET scan clear, no chemo or rad,biopsy in 9/2010, 2nd excision 10/2010 didn't get all carcinoma in situ; partial gloss & excis. right floor 2/2/2011 margins clear. Part.gloss-10/5/2011 sev dys clean marg. HPV neg. Don't smoke or drink. SCC floor of mouth left side 4/2016. Dysp excis. rt palate 7/2017 Part gloss sev dys lat marg 2/2019 Part gloss free flap rt neck disc 5/2020 Part gloss bilat neck disc 7/2020 33 rad 3 cis.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Biotene is great for this drymouth as well as the Biotene toothpaste I brush my gums and tongue with. They make a spray too but I have never tried it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2006 Posts: 17 Member | | Member
Joined: Aug 2006 Posts: 17 | I also heard that mouthwash with alcohol is not good. Biotene is something I've used and I think it is very good. They also have dry mouth stuff and toothpaste! I sometimes use baking soda and water as it is a base and I've heard that oral cancer patients have acidic mouths, so the baking soda would reduce the acidicy. Good luck!
dob 12/22/45
2002 DX SCC Stge 4,tumor lft sde tongue,surgery
2005 recur Stge 4 tumor lft side tongue
surgery, flap, XRT
2010 recurr. Stge 4, tumor rt sde tongue
surgery, flap, chemo, radiat. Port, PEG
2010 Peritonitis, liver abc., bacter. infections
2011 Exposed jawb. HBO
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