| Joined: Nov 2010 Posts: 2 Member | OP Member Joined: Nov 2010 Posts: 2 | Hi It has been about 7mo's since my husband passed on to a be with the Lord. He first had squamous cell cancer in 2003. He had a lump on the side of his neck and I insisted that he have it checked a week later he had Radical neck dissection. And then on and on. He did have several years of quality life until another recurrence in 2009. I have learned a lot about PEG tubs and overlap radiation. He had damage to cranial nerves. It has been a long and painful journey. However I learned a lot and I can relate to so many of the posted questions. Tom was an airline pilot. We use to say that Doctors are just practicing Pilots are not. I have the utmost respect for many Doctors some you can talk to some not so much. I think this forum is great and something that I missed when I was googling everything else trying to learn all that I could. I wish all who ever view this site Gods Grace. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hello and welcome to OCF Ellen. I am sorry you have lost your beloved husband to this awful disease. Even though you didnt find this site until now, it still can be useful to you. Im sure your wisdom could help others if you would feel you want to help answer questions.
We have several caregivers here who have lost their spouses to oral cancer. Its a very hard thing to go thru caring for someone and watching what they are going thru, all the while keeping a cheerful and encouraging disposition. I dont think I would make a very good caregiver.
Glad you took the time to register and post your message. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2010 Posts: 224 | Sorry you lost your husband... I wish you the best and if you need to talk, we are here for you!!
25/female at diagnosis Dx;stage 3 SCC tongue 03/25/2010 Surgery 04/13/2010 Trach,ng tube, peg feeding tube Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue. 30 rounds IMRT ended July 15,2010 | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | I, too, am so very sorry that you lost your husband to this horrible cancer. Please stick around. There are a lot of caregivers and patients who could benefit from your experience and insight. Plus, I have made some wonderful friends here. This is a special group of people and there is always someone who can relate to what you have been through. Welcome to OCF.
My best to you� Anita
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2009 Posts: 329 | Ellen,
I'm sorry for your loss. I do know what you went through I went through the same with my husband 10 years ago, Stage 4 throat cancer. I will never forget the pain and agony he went through. The nightly trips to the ER only to be told to go home with pain meds. We also said the same, Doctors are practicing... on him. Eighteen months after he was diagnosed the Lord took him.
Always remember you did everything you could to help him through this terrible disease, for sure he knew it.
I regret to this day we didn't know about Moffitt Cancer Center we would have been there in a flash.
Who would have ever thought I would end up with this terrible crap. Thank God for this forum and Jerry who helped me through this in the beginning.
Now it's time for you to take care of yourself.
Take care Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2. Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Sorry for the loss and I hope you can help others on this site. I'm sure you can.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
Forums23 Topics18,168 Posts196,925 Members13,103 | Most Online458 Jan 16th, 2020 | | | |