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#124594 11-14-2010 10:21 AM
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julieSW Offline OP
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Hello my name is Julie and I am looking for some kind of information. I was at my sedation dentistry appt on Thursday. Called my inlaws who picked me up from that appt Friday after work and explained that I needed to thank them for picking me up and I don't remember anything about Thursday. They asked me if I remembered talking to my dentist, nothing. So they told me that I have a yellow referral slip in my dental bag and proceeded to tell me that my dentist found 3 white lesions on the roof of my mouth that she is very concerned about and has an appt for me with an oral surgeon. I need to call the surgeon Monday. Wow... this is just so caught of guard. I did know about the one because it has been there for a few months now and I can feel it with my tongue, I just thought it was an irritated taste bud, never did look at it and notice the two other small white lesions next to it that I cannot feel. Can anyone tell me what will happen when I go to the oral surgeon for this appt? I just cannot believe this is all scheduled and I don't remember any of it.

any friendly help is so so appreciated.


JAS
julieSW #124595 11-14-2010 11:18 AM
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Hi Julie - biopsy is likely the next step. Small nearly painless cut to gather a small tissue sample to be analyzed by the lab. Best of luck to you.
mark


11/1999 SCC tongue - surgery
1/2000 Met(s) in lymph nodes - modRND
2/2000-4/2000 RT ~6 weeks
end of 2006 SCC tongue - surgery
1/2008 SCC BOT - surgery / PEG installed
2/2008 chemo & RT
4/2008 last time I consumed solid food by mouth
airkitty #124597 11-14-2010 11:42 AM
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Thank you Mark,
What is the typical length of time that these biopsy results come back? Or does the oral Surgeon view them onsite? Does the lab send you, the oral surgeon or my dentist the results?


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julieSW #124613 11-14-2010 08:18 PM
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Usually an oral surgeon will do an exam then consult on the initial visit. Sometimes a biopsy is done with sedation and that would be discussed. The second visit a biopsy would be done. The third visit would be aprox a week later to give the results and any further instructions. This is what I experienced with my oral surgeon. It could vary slightly with different doctors. A biopsy 90% of the time will take 1 week for the results. I would recommend sending results to also your family doc just so that there is a good set of records there. Best of luck with this.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #124766 11-16-2010 10:44 PM
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Thank you Christine! It will be interesting to see if I do not pass out walking in. I have such such dental phobia from horrible childhood dental experiences I don't think I will make it through. In fact I think I would like it better if I did just pass out. Thank you.


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julieSW #124982 11-20-2010 04:11 AM
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just so you know, u don't have tastebuds on the roof of ur mouth, laugh. but its a good thing to have an appointment set up, better to be safe then sorry.
They will either set up a scan, try some different treatments first, or biopsy. If they biopsy, they sometimes will give you an option, but othertimes, they will just tell you how they will do it. I would let them know right away about ur dental phobia and let them know that you have sedation dentistry done and that will probably help them, and they will more then likely sedate or knock you out to do a biopsy if they need to.
Biopsy results can be a week to 2 weeks or more. I just had my first post treatment biopsies done on november 9th, and i got preliminary results that day that were negative, but haven't received the final results/pathology yet, and it's been almost 2 weeks. They will always tell you your results of biopsy/scans what not, and they will send them to the referring doctor, one who set up scan or performed biopsy. If you want ur dentish or general doc to have them, you will have to request they receive results or bring them a copy yourself.

Hoping this all is negative for you, if not, you have a good bunch of people here that will help you through this!!


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
bethers0808 #125662 12-04-2010 01:21 AM
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Thankyou! I know it was one of those... moments. That's the same thing my husband told me. HA! I went to the oral surgeon appt. Two weeks ago. I think my sedation dentist gave him a heads up on my fear because after viewing the area he advised we remove it with laser and send it in for biopsy that day. He asked me if I wanted gas and that opened up the response for me to tell him myself. He also found out that sedation and gas does not affect me at the dentist like it should. 20 min of gas and still shakin in my boots he proceeded. Actually he was very good, the procedure wasn't as bad as I thought it would be. The swallowing and soft foods were pretty unforgiving for about a week but by today, my two week appt it is better. Today I saw him again, he told me the day he removed it he thought it was a pappilloma. Great I was thrilled. Today he tells me he was wrong. I tried to understand what he was telling me but it just went over the top both times he explained it. He used terms and words that I cannot even remember. All I know is that the cells were abnormal in the mocousous membrane, the abnormal cells condition was super long like 4 words the first word started with an I the second a d can't remember the rest. They believe it was confined to the top layer membrane and if it goes deeper than it turns into cancer. Does this sound wrong or did I misinterpret this? This doesn't make any sense to me. So he said we need to watch it to be sure it does not grow back and that he got it all. Appts every 3 months for the next year. He believes he got it all this time and he did laser a dime size deep circle/ball from the soft pallate of the roof of my mouth. Told me to watch it and that mostly this condition is caused from smoking. He showed me the removal of the lump and the arm coming from it. I am going to have them send the records to my MD and have her interpret it for me at my cardiology appt on the 15th. It's my own fault for not writing it down and asking more questions.....


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julieSW #125774 12-06-2010 05:33 PM
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Happy Monday!
Ok now I guess I can talk a little more intelligent after calling back and getting everything written down for me. I am wondering with this good news should a person be more proactive or go with the every 3 month oral surgeon checkup to monitor that spot?
Anyone had this same diagnosis?
Severe Epithelia hyper Keratosis & severe hyper plasia of the midline area soft and hard pallate. Features of severe epithelia dysplasia. Oral surgeon wants to monitor every months. Is this common, I was also curious is it normal for him to not check for other possible spots and to just focus on the dental referral spot?
Thank you.

Any advise is so much appreciate.


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julieSW #125787 12-06-2010 11:09 PM
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hperkeratosis and hyperplasia are nothing to worry about. The potions that have dysplasia in them ( unidentified in your post) you need to ask a question about. Is it high or low grade dysplasia? Low grade only about 25% of the time ever turns to something worse ( like the big C), high grade you need to have removed, not watched. So more questions for the pathologist to answer for you...........


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Brian Hill #125797 12-07-2010 06:27 AM
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Thank you Brian. I sure will ask. They did remove it and want to watch the removal spot is what I was told. Do people normally talk directly to the pathologist? Or should the pathology report the oral surgeon gets back state this information to him and he just did not tell me that? My records are being transferred to my MD which I coincidentally had an appt setup with on the 15 of this month for some cardiac monitoring I have every 6 months. Will this be a question I can ask her and she will be able to tell me or do I need to go directly back to the OS for this info? Thank you for your input it is so so appreciated.


JAS
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