| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | It has been a while since we have heard anything from Pete's daughter. Ive been concerned, so I emailed her and here is the response she sent me....
I'm so sorry that I dropped the ball. It has been quite a week. I'll be setting up a site on caringbridge.org tomorrow, will post on the OCF site. For now here is the shirt version. Plz repost if you want to ocf. We got my dad into a skilled nursing facility on monday. All seemed great, he was super lucid even asked for his computer. Wednesday we got the official 'end stage' cancer verdict from oncologist from seattle cancer care alliance. Surgery not an option, chemo not an option. Tumors have progressed in the tonsils and neck enough to pinch a nerve and collapse the left side of his face. Sad, terribly heartbreaking, but he was ready to say no to treatment so sort of okay.
On thursday his PEG tube became clogged enuf to not allow for food or pain meds. He was admitted back to hospital at UW Medical Center. He has pneumonia now. PEG has been fixed, and we are stalling over the weekend to find a hospice close to home that will care for trach patients.
My brother is here again, and my aunt was here last week. He was given a 6 month est prior to the pneumonia. He did receive all the emails, and I will continue to print out the OCF thread for him.
Thank you for caring so much. I know that he has drawn most of hi cancer support from the site and all of you. I will update the thread on the site. Do not hesitate to email me if you need more info. You are his family too.
Odile ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | [quote]There but for the grace of God, go I[/quote] Despite all Pete's physical problems, he was always cheery and looking forward to the future. He even would give me credit for posting about a different type of traech tube that my CCC hospital ICU unit used to expedite the return of my speech when I had forgotten all about it and he was helping some newcomer here on OCF. Life is just not fair. I hope the doctors are wrong and Pete rebounds Thanks Christine for following up. Charm
Last edited by Charm2017; 06-13-2010 07:46 AM. Reason: typos
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Odile,
I'm so sorry to hear about your father. He has been a tremendous support to me and many others on OCF. I will continue to keep him in my prayers. Miracles do happen.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Odile, I am so sorry to read the latest on Pete. It is good that he has his immediate family around him and I am glad that you know he has another caring family here on the OCF. Hoping the doctors have got it wrong. Thanks for checking Christine. I have been looking daily for an update. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Aug 2009 Posts: 4 Member | Member Joined: Aug 2009 Posts: 4 | Again, I apologize for not posting about my dad sooner. I know that he is unable to update for himself right now as he's zonked from methadone. he just started taking it yesterday, so we think there will be an adjustment period while he gets used to it. hopefully this website will help, i can keep everybody updated! my brother will post there too. i myself have been going to gilda's club meetings and not using this web site very much so i forget to update it. thank you all for your support!! i know my dad appreciates it even if he is unable to respond in kind right now. http://www.caringbridge.org/visit/peterdumbletonodile [email protected]
daughter of pete d | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Odile
I'm confident I'm speaking for all of OCF when I say that no apologies are necessary. Thanks for the CaringBridge link. Let your Dad know how much we miss him and wish him well Charm
Last edited by Charm2017; 06-13-2010 05:21 PM. Reason: typo
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Thanks for posting Odile. Im glad you started a Caring Bridge page for your dad. That was a great idea. It makes it so much easier for you to keep people updated thru that site.
I posted a quick note on his page. I will be getting a card out to him later in the week. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | Odile, my thoughts are with you and your family. David two
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | I'm so sorry! I had been wondering how he has been doing so thanks for the update. My prayers will continue to be with Pete and his family.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
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