| | Joined: Feb 2010 Posts: 1 Member | OP  Member
Joined: Feb 2010 Posts: 1 | My 18 year old nephew was recently diagnosed with Mucoepidermoid Carcinoma of the Submandibular Gland with lymph node involvement. Any suggestions on how to help my brother and his family? Any good books read, support systems etc. Any ideas would be greatly appreciated. THANKS! | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. This site is full of caring members who will give guidance and support. The main pages of OCF are full of valuable info. There is a search bar both on the main pages and also here on the forum. I would encourage your nephew and his family to all join OCF to use the best place for oral cancer resources.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hi and welcome
If you you go to the forum list and read the information for new members this will give you all the basic stuff you need to know about what to expect and how to get help.The search engines are a great tool for getting specific questions answered and the wealth of experience from all the people here will fill in any gaps.Your nephew is very young to get such a diagnosis and his youth and strength should help him get through the next few months which will be undoubtedly hard on him and probaly even worse for his family to watch.
Last edited by Cookey; 03-01-2010 09:31 PM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Start reading here. http://oralcancerfoundation.org/facts/rare/mc/index.htmAs an 18 year old he is probably a computer wiz.... get him on to these boards and let our survivors talk with him, and through their experiences let him see a hopeful future.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Margie. you have heard already from a few very intelligent people including our founder Brian. Listen to them and you will never go wrong.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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