| | Joined: Feb 2010 Posts: 1 Member | OP  Member
Joined: Feb 2010 Posts: 1 | I am a survivor of head/neck cancer, SCC to be precise, diagnosed at end of 08/05, surgery in October of same year, a 15-hour job to replace part of tongue with stuff from wrist (including nerves) along with a radical neck disection, followed by chemo (cisplatin) and radiation.
Subsequently, I was diagnosed with lung cancer, June of '07. They said I had '10 months to live', but were wrong: they misdiagnosed most of the stuff in my neck (and face) as cancer, when it was really an infection. The end result was a lobectomy, but that was better than the alternative.
I am now NED (No Evidence of Disease). I am a big contributor at CSN, but new to this one.
Joe | | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Joe,
Always good to have survivors post here.
How did the nerve transplant go with you? Also, was your lung cancer SCC from the oral cancer or a form of lung cancer?
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Keep posting here. You will give many people hope.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | congrats on NED! great to see survivors!
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Feb 2010 Posts: 1 Member | | Member
Joined: Feb 2010 Posts: 1 | Hello totally new to all this, I m now a survior of cancer and going thru the recovery process from radation and chemo... kinda lost and trying to keep up with taking my bipolar meds and eating and drinking every thing thru a feedding tube right now . it can be a little overwelming from time to time but keeping the Faith and a positive attidute. I m part of this for life ...
The life we lived yesterday was worth it
The life we live for tomorrow is our Hopes and Dreams
Th​e life we live today is GODS gift to us
That goes to show why they call the moment "THE PRESENT"
THA​NK YOU GOD FOR THE WONDERFUL GIFT!
​ ​
Your adopted child
Frank
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | fdorsey,
start a new thread and introduce yourself. u dont want to get lost in someone elses thread.
congrats on making it thru treatment. so glad to see u have such a positive attitude...that helps alot. somedays faith is all we have.
try and get a signiture line and give us some info on ur cancer and treatment. you can do this by clicking "my stuff" at the top of the page, then "profile", the signature will be at the bottom of that page.
keep us posted!
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Joe, congrats on what you have been thru and seem to be upbeat about it. I love stories such as yours.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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