#11206 07-06-2007 09:16 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | OP  "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | robs cancer has come back and is so aggressive that he is not expected to live for more than a few weeks if that.I have had no internet for 4 days and have been desperate to talk to someone here who will help me get my head round this.
he has rapidly advancing tumours in his lungs and a necrotic fungating tumour in his face that has burst through the skin.
god help him.
today he has been passed over to the palliative care team,who at last have eased his pain,he wants to come home to yorkshire and die quietly wth me,which will happen next saturday.he has made his will and is saying his goodbyes and then we will start the final leg of this hateful journey. i hope you will all pray for both of us but mostly that his passing will be peacful
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#11207 07-06-2007 09:21 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Liz, you are both in my thoughts and prayers, I am so sorry to read this. God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#11208 07-06-2007 10:07 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I'm very sorry to hear this news, Liz. I will send my prayers that he has good last days and for your peace of mind through all this.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#11209 07-06-2007 10:28 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Liz
I am very sad to hear this.
You are both in my prayers.
(((HUGS))) Petey
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#11210 07-06-2007 10:53 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Liz,
I am truly sorry to hear this. My heart is with you both. I understand his wish, my father passed with all of us with him. Surrounded by love is the only way to leave this world to pass to the next. May God Bless you both and all your Family. It is hard to let go of a loved one.
Take care,
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#11211 07-06-2007 11:52 AM | Joined: Mar 2007 Posts: 179 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2007 Posts: 179 | Please know you are in our thoughts and prayers during this difficult time. LJ
CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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#11212 07-06-2007 11:52 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | Liz,
I'm saddened to hear the news. I wish you both peace in the time to come.
Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#11213 07-06-2007 12:47 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Liz and Rob
You are in my thoughts. I wish you peace and love together at this time.
Love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#11214 07-06-2007 01:11 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Dear Liz & Rob, I'm sure you 2 have the prayers of everyone here.Barb T and I will be praying that Rob doesn't suffer much and that one day , you 2 will be together again. Love EzJim & Barb
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#11215 07-06-2007 01:57 PM | Joined: Jul 2006 Posts: 68 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2006 Posts: 68 | liz
you are in my thoughts and prayers. i'm so sorry to hear about this.
lynn
linda anderson
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