#11100 06-24-2007 03:06 PM | Joined: Sep 2006 Posts: 22 Member |  Member
Joined: Sep 2006 Posts: 22 | B,
I am so sorry. You and your family are in my thoughts.
Gary
SCC left Buccal Mucosa (cheek). Surgery with Modified Radical Neck (23 lymph nodes - all clear). IMRT x 30. Finished tx 11-21-06
"Don't give up, don't ever give up!"
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#11101 06-24-2007 03:33 PM | Joined: Feb 2006 Posts: 58 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2006 Posts: 58 | My deepest sympathy to you and your family. You are in my thoughts and prayers. Just remember he is no longer suffering.
I hate this f...... disease.
Michelle | | |
#11102 06-24-2007 04:18 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | B,
I am deeply saddened to hear of Brian's passing and especially to hear of how rough the past several months have been for all of you. My sons are the same age as Brian's. May I offer my sincerest condolences to you and Brian's entire circle of family and friends. May you find comfort in your memories and may each day be brighter for you.
Best wishes,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#11103 06-25-2007 01:40 AM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | My deepest condolences to you and your entire family. Thanks for sharing your experience with us.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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#11104 06-25-2007 05:44 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | My deepest sympathy to you and your family. My your fond memories help you through this difficult time.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#11105 06-25-2007 08:49 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Dear B and Family
My sincere regrets and deepest condolences.
Brian will always be a source of inspiration to everyone on the OCF. His all go, no quit attitude will always be a "positive" for many.
Sincerely, Petey
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#11106 07-02-2007 12:01 AM | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 35 | You shine in this email for Brian. The strenghth and loce you had truly is reflected. Mya he eat, Taste, Smell and swallow everything he has thought of throughout this. May you and your children find peace...God Bless
Caregiver in Florida
DX tonsil cancer 4/13/07 both tonsils removed both positive.,. Stage 4 with 3 nodes on Right and 2 nodes on left. Just finishd 2 chemo - cisplatn and 35 Radiation 6/22/07
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#11107 07-02-2007 03:24 AM | Joined: Sep 2006 Posts: 50 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2006 Posts: 50 | Thank You all for your sincere condolences, I am having such a difficult time, I just feel like I can not go on without him emotionally and financially. I just don't know what to do my heart is breaking
B
BOT stage IV SCC moderately diff, invasive. radiation 2 chemos. DX 06/06. Ended radiation 8/11/06. Bleed out from tonsil area from radiation necrosis 10/27/06.
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#11108 07-02-2007 05:03 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Dearest B, my thoughts are with you, I am sorry you have to go through this. I have a friend whose husband died suddenly 3 weeks ago (heart attack) age 43. She is having a very difficult time, they have 4 children, she went to a doctor to get some help.....I will keep you in my thoughts and prayers...Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#11109 07-02-2007 08:06 AM | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | B, I am so sorry for your loss. I wish there was something to say to make you feel better, but there isn't. Know that everyone here who reads your post feels your pain and empathsizes deeply with and for you.... Your husband went through such a difficult and horrible time with all this, and emotionally for you it must have been a nightmare... so sorry for all you have had to bear.
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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