| | Joined: Nov 2009 Posts: 3 Member | OP  Member
Joined: Nov 2009 Posts: 3 | Hi,
My name is Pam I was diagnosed with scc to left side of tongue and one lymphnode November 14,2008. I did the partial glossectomy and neck dissection.
Also 32 radiation treatments.
Was all clear on April 26th 2009.
Went to follow up ct October 21st 2009. Head and neck clear but spots on lungs. Re did ct and pet scan 11/5/2009 still spots unsure of infection or cancer.
Biopsy 11/11/2009 positive scc to lungs 3 spots . largest is 2cm.
I am 31 almost 32 have 2 boys ages soon be two and soon be 7.
I have never smoked or drank. I am so confused how this is back soo soon?
Thanks,
Pam C.
keep fighting
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Pam,
Did you do any chemo in 2008?
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2009 Posts: 3 Member | | OP Member
Joined: Nov 2009 Posts: 3 | Kelly,
I did not have any chemo in 2008.
not sure of the plans just yet David just got this new diagnoses Thursday I see the Chemo oncologist Wednesday.
keep fighting
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | At the end of your treatments, ( where were these done?) what tests / scans etc. did you have that confirmed that you were cancer free ( including your lungs) ? It is very hard to imagine that lesions this size were not present in your lungs and they went from zero to 2cm in this amount of time.
You will get two kinds of support on these boards, people that try to help you come to terms with the biology, science, and people that will offer you moral and emotional support. Please do not think because your first two replys are from science oriented people there will not be posts soon that speak to the emotional side of what you are dealing with. Those of us with science answers ask lots of questions first to get the lay of the and, please do not be put off by that.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Pam, you and I are the same age. I also have two boys. It is truly crappy isn't it? I atart my treatment this week. Gload you found the site. SO mancy people on here are a great encouragment. I never would have made it thos far without them. I will be praying for you and your family. PM me if you need to talk
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Nov 2009 Posts: 3 Member | | OP Member
Joined: Nov 2009 Posts: 3 | At the end of my treatments they did ct and pet 6 weeks after radiation ended. Both scans were clear on head neck. Which also gets the top of my lungs. Which when repeated the ct 10/26 it showed the lungs top with the spots so they did full chest and full body ct 11/5.
keep fighting
| | | | | Joined: Aug 2009 Posts: 90 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2009 Posts: 90 | Pam, sorry to hear about your news. It stinks, after all you've been through and it's scary to face this again. How were your scans prior to your treatment?
I'm assuming something was sitting there then.
Anyways, now you need to get ready for battle again.
Where will you go for your treatments, what are the plans, etc.
thinking of you as you travel this road again,
Nancy
caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Pam,
I had my first scan 3 months post Tx and I was all clear except 2 spots in the top part of my lungs which the path report said "can not be excluded". Both my RO and MO said "not to worry", yeah right!! Three more months went by and another scan and the first 2 top spots were resolved but I had 2 new spots in the lower part of my lung. Again "not to worry", yeah right. Three more months and finally a true all clear so lets hope you have the same pattern.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | Welcome to OCF. You'll definitely get some great help here.
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
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